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    Hi! Also just realised I haven't been on In awhile. Going ok just had a really bad cold and feeling crappy from it and it doesn't go away. Do you find that, that you have 'no immune system' in want of being less dramatic but that it's hard to get over colds etc? Thanks for checking in on me
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    hi steve hope you are well and all your family i will be a away a couple of weeks on holiday we are going to narooma on south coast and to canberra to floriade take care hugs kiml
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    Hey steve yes it was awesome seeing u and swapping stories. U r really nice and glad u could meet my Mum too. See you soon!
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    hi steve hope things are well with you i am going away for a break for 2 weeks on tuesday sarah my daughter has now been put on plaquenil as well for her lupus take care wish all your family well if i do not speak to you before i go i will see you when i get back hugs kiml
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    How is Tam - and the boys? And your little cute grand daughter?
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    How funny is that ... I just clicked on your profile to say Hi big brother when I saw there was a visitor message for me - and it was from you. You are so nice to me! How is everyone? Guess who just came in the door smelling of horses. I really hope your daughter is smelling of heaps of horses as well! And Cherrie? Is she running around the padcock yet?
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    Thank you for you post on my profile about my family. I am just now seeing you posted it last month. Thanks for keeping me and my family in your thoughts. It is much appreciated. I haven't had much time to get on recently, I have been busy with so very much and haven't had a chance to keep up on here. Thank you for your concern though and I am going to try and make it on here more. How are you doing? How is your step-daughter? Or was it daughter? I believe it was you who posted something awhile back about her having to go in for surgery. Forgive me if this isn't you though... But for some reason I think it is...
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    LOLOL I may should have kept the F I N E thing to myself. Ya'll are going to catch on now! My niece had a baby shower today and I so love (NOT) those. I then took my daughter to a friends house and now I am on the couch and hurting. I guess i would rather be hurting here then hurting in the car!

    How are you today? I just so love reading your posts. Not too wordy (like me LOL) but always caring and inviting. I have figured out that I am going to have to be less wordy because i am leaving words out that I want in there and adding ones that don't belong. Much worse than normal brain fog and I hate sounding stupid!

    Thanks for checking in!
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    Hi big brother ..I missed all the winter weather, I come out of hospital and it is spring. What a wonderful life I have!
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    Holy Crap! Excuse my outburst but I am dreading the 110 they are talking about this weekend so I can't imagine 130! Thanks for the explanation of the seasons. I know ya'll have summer During our Winter because Linda and I talked about it. I can't imagine Christmas being in the summer! LOL Last year there was a thread where she posted some of the Christmas videos from "your neck of the woods" (that is a saying from the southern US. Northern people and southern people are often very different). I know I laughed so hard when she did that! Actually, I am going to pull that thread so all of us dealing with this heat can imagine Christmas in the outback. LOL
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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