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  1. View Conversation
    hi steve just checking in hope you are feeling well hugs to you and all your family
  2. View Conversation
    Hi Steve, things are pretty bad at the moment. I will email you.
  3. Hi Steve,

    Thanks for saying hello. So far, all is going well with Dad. Surgery is scheduled for Friday. The early stage 1 diagnosis has been verified by two other Dr.'s, including the surgeon who will so the surgery. This is more great news, as that makes this curable. Dad is feeling well, but getting a bit impatient, as he just wants to get it done and move on. Can't blame him.

    As for me, I've been more or less exhausted. Been trying to pace myself and get plenty of sleep. Sometimes I succeed, sometimes not.

    How's everything with you?

    Rob
  4. View Conversation
    Hi Steve I am having a wonderful time and doing pretty well/ I posted my plans. You will be so pleased as they are drastic! Yes being alone with God gave me all kinds of boldness to change my life. I have a lot of work to do before I can quit my job, but my pension is quite nice and it should pay off all my debt except my home. I am then going on a long journey. Hope you are well. Tammy
  5. View Conversation
    Well, thank you sir. I was thinking about Phyllis also. I want to try and telephone her. I have several calls to make but forget to do.

    Thanks for lifting my spirits. Hugs
  6. View Conversation
    Hopefully you and your family are well and enjoying the lovely spring weather.
  7. View Conversation
    Hello, I'm bored .... sick of being sick .... my doctor wrote a sick note until November 1, but then my work's sickness insurance was accepted and told me not to go back to work yet. I am waiting for my doctor to phone me. Now that would be any time in the next 12 days. In the meantime I am in limbo. I have been supplied with a wheelchair (haven't used it yet because I need someone to push it), and an electric recliner chair. Also have the opportunity to have a gopher or whatever it is called. I want to go back to work, my physio doesn't want me to and my principal is worried about me getting sicker. But it all depends on what the doctor says as he is the one who signs the sick notes. I am sick of people telling me - don't go to work, and the doctor saying go to work and the insurance saying don't go to work. I NEVER go on sick leave and when I do, this is what I have to deal with. blah blah blah, sometimes i smile, other times I don't. Today I am not smiling!
  8. View Conversation
    I went to my rheumy last Friday too same news as well, seems to be well under control. No such luck with me reducing the mtx but, I've just finished steroids abt a month ago tho. Need to decrease my hard nights out though cos my liver readings were a tiny bit elevated but still in normal range.
    Sorry to hear abt ur fibro. What meds do u take for that?
    Not gonna be able to make the next catch up I have a wedding that day. Seems to be the time for all the ppl I know to get married I have 3 weddings In the next month.
  9. View Conversation
    hi steve just catching up back from holidays early rained out and cold caused to much pain maybe next time i should come your way hope you are feeling well my friend hugs to you and your family your sydney mate kiml
  10. View Conversation
    Hi there! Howve you been? Hope all is well with you and the family!
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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