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    LOL Football! They moved the cheerleaders and the mascot down to the ends this week because of stadium rules where we were playing so I had to ignore her most of the game! LOL I stayed on the 50 yard line! I stop in and read but brain and long posts still not working. If this was more like facebook where 1 statement comments are perfect I would be much more active! How have you been? I LOVE reading your comments. You are always on top of everything
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    Hi Steve, thanks for thinking of me. Have not been very active due to some problems, physical and otherwise
    HUGS
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    thankyou steve but that is just the way it is you take the goodtime with the bad. i am glad you are all doing okay hugs
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    hi steve just popping to say hello and see how you and family doing hugs
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    Ellice finishes Riding for Disabled next weekend so we are free to go for a drive down your way from the 17th. We would love to pop in some time if the offer still stands.
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    Thanks yes a watercolour with some gold.
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    Hello big brother ... I am not sure if we can make it next Saturday, I have a pretty busy week and we have a wedding Friday night. We are heading down south for a drive tomorrow (Sunday) it is a pity the meet up isn't for tomorrow though. It will be nice to get away from everything, even if it is only for a couple of hours. If I feel up to it next Saturday I will text you. I see my specialist next Friday, I'm not really looking forward to it because he is being really difficult and not a very good communicator. When everything is sorted out and he refers me to someone else then I will tell you the whole sorry story.
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    I will put it up and see!
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    Fleeting thought! We love to go to the Newbliss Winery on the Williams Pinjarra Road from Pinjarra up to Dwellingup before getting to Dwellingup the turn off to Newbliss is on the left hand side. What do you think about that as a venue?
    Desley
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    Hi Steve is the meet on the 18 th still on? Hope you are ok!
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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03-09-2011
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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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