11-18-2014, 07:33 PM
it is always difficult when we are in a flare,
I hope when things calm down within you,
you will find it easier to...
2 replies | 98 view(s)
11-18-2014, 01:06 AM
great to hear the progress.
glad it is working out so well.
how are things financially,
are you working?
4 replies | 239 view(s)
11-18-2014, 01:03 AM
sorry I have no information for you ......
but I did want to say hi
3 replies | 142 view(s)
11-13-2014, 06:25 AM
are you taking medication for your raynauds?
listening to your symptoms, I would check if it is being controlled properly.
I use a tens machine,...
2 replies | 275 view(s)
11-13-2014, 06:20 AM
I am also in a similar position.
I am not as severely separated .... and I am also seeking medical intervention.
I see both a counsellor, and a...
2 replies | 72 view(s)
11-12-2014, 02:08 AM
it is hard for some to understand.
even little basic activities can become too much at times.
I wish I could help .... but airfare...
8 replies | 154 view(s)
11-10-2014, 04:59 AM
hi angie, welcome.
I am glad that you have found us ....
hope you can find a rheumatologist.
they are the specialist that is best suited to help...
3 replies | 78 view(s)
11-08-2014, 09:41 PM
many of us do suffer from fatigue .....
but your is a little more extreme than most of us get.
fatigue can be mild or...
5 replies | 109 view(s)
11-07-2014, 10:57 PM
sero negative is not an uncommon thing, but many doctors still do not believe it can happen.
many of us here have it, and...
2 replies | 52 view(s)
11-01-2014, 07:30 AM
hi and welcome.
different people have different symptoms, .......
so you may / may not have an issue with children.
on this site we have had a...
2 replies | 125 view(s)
10-31-2014, 10:09 PM
hi and welcome.
we are glad that you have found us .....
but sorry that you need to find us.
you will be happy to note ...
there are quite a...
2 replies | 104 view(s)
10-30-2014, 10:01 PM
hi Kristin, and welcome
yes it is possible to have an extremely high ana and not have an auto immune disease.
the opposite is also possible, to...
2 replies | 140 view(s)
10-30-2014, 01:05 AM
hi and welcome to the forum.
please tell us a little about yourself
2 replies | 130 view(s)
10-25-2014, 05:21 AM
Lupus: Australian scientists identify genetic cause of disease in 10yo girl
ABC News: Carl Smith
Scientists from the Australian National...
2 replies | 564 view(s)
- Date of Birth
- December 2, 1961 (52)
- i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.
i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.
these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).
i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.
my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.
i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).
i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.
i had no staminer, sometimes even raising an arm was an issue.
what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.
the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.
In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
- pinjarra, western australia
- family, horses
- disability pensioner
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.
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View steve.b's Blog
on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!
Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.
All of these things are a cost of having Lupus.
These are not what I am referring to.
As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make