Yesterday, 06:16 PM
once you start to understand more ...... the desperation lessens.please remember you only have 1 shot at this life, and it is never worth taking it...
4 replies | 62 view(s)
04-14-2014, 06:46 AM
hi, and welcome.you are not alone with this.I am also a male with lupus.with todays medical treatments, some people live a normal life with no...
4 replies | 62 view(s)
04-11-2014, 08:01 AM
2 replies | 76 view(s)
04-11-2014, 08:00 AM
one of the main supplies of melatonin is st johns wort.
please look into drug interactions before taking it.
this is not a good drug for many of...
2 replies | 62 view(s)
04-09-2014, 06:54 AM
i have found that "deep tissue" massage is not good for lupus suffers.
the reason behind this is that deep issue works on the layers of muscles,...
4 replies | 91 view(s)
04-09-2014, 06:49 AM
i recent study found that homeopathy does work well as a...
1 replies | 24 view(s)
04-08-2014, 04:59 PM
i am soooooooooo glad you are graduating
5 replies | 75 view(s)
04-07-2014, 05:33 AM
hi, and welcome.
there are a few other members who also have used benlysta .....
so you are not alone with this.
please use the search function...
2 replies | 55 view(s)
04-06-2014, 08:57 PM
being a grand parent .....
i understand how the pain is worth the joy you had.
6 replies | 69 view(s)
04-06-2014, 08:53 PM
you are asking a very open question.
i for one, am not sure exactly what you want to hear.
if you were to ask a series of questions,...
2 replies | 36 view(s)
04-06-2014, 05:04 AM
if you want to help take care of your family, then help.
if you need an excuse not to help ... you have it.
if it were me, (and would opt for...
2 replies | 42 view(s)
04-05-2014, 12:20 AM
hi sharon, and welcome.
i am glad that you did not give up seeking to find an answer to what is happening with your body.
unfortunately for some...
3 replies | 59 view(s)
03-31-2014, 01:11 AM
this is my concept as well ..... too many people get all hung up over whether they have this or that problem.
if it is auto immune (and there is 63...
6 replies | 238 view(s)
03-29-2014, 05:57 PM
i was talking to a teenager who is taking benlysta ......
her understanding is it can take months for any effect to be noticed.
please be patient,...
1 replies | 78 view(s)
03-29-2014, 02:55 AM
peptides have been studied for over 15 years.
there is reason to be happy with this study, but it still needs more research.
we need some big...
6 replies | 153 view(s)
03-24-2014, 02:51 AM
27 years for murder .... just kidding
congratulations. it is a milestone worth celebrating
6 replies | 105 view(s)
03-24-2014, 02:47 AM
any post must be at least 10 characters.
that is why the hugs has the arms around it.
(((hugs))) = 10 characters
2 replies | 62 view(s)
03-22-2014, 06:43 PM
hugs to you shanna ....
i hope you manage to stabilize :)
2 replies | 86 view(s)
03-20-2014, 08:02 AM
how did your doctors visit go ...... or are you still getting there?
7 replies | 133 view(s)
03-20-2014, 07:56 AM
hi gee17, and welcome.
i would like to start by telling you that there is no diet that will cure lupus.
there is only 1 item that is confirmed to...
7 replies | 142 view(s)
03-20-2014, 07:46 AM
hi kristineholly, and goodbye marvin :)
living in texas has its challenges, as one of our other moderator knows all too well.
5 replies | 120 view(s)
03-18-2014, 02:28 AM
hi nancy and welcome.
you are not the only 62 year old on here .....
so no matter what our age, we are never alone.
please take the time to...
3 replies | 90 view(s)
- Date of Birth
- December 2, 1961 (52)
- i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.
i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.
these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).
i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.
my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.
i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).
i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.
i had no staminer, sometimes even raising an arm was an issue.
what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.
the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.
In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
- pinjarra, western australia
- family, horses
- disability pensioner
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.
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View steve.b's Blog
on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!
Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.
All of these things are a cost of having Lupus.
These are not what I am referring to.
As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make