10-15-2014, 01:34 AM
I have been on mtx for about 5 years.
one of the things we notice .... it takes a long time to build up into our body ...
but it is dispersed very...
4 replies | 242 view(s)
10-15-2014, 01:29 AM
I was looking on facebook the other day ......
the ultimate spider does exist......
a FLYING SPIDER
5 replies | 114 view(s)
10-15-2014, 01:25 AM
hugs, and good thoughts to you :)
4 replies | 43 view(s)
10-10-2014, 11:35 PM
I had an operation ...
to help clear out my sinuses.
I still get regular infections
and need a double dose of antibiotics to get over the...
4 replies | 65 view(s)
10-10-2014, 11:30 PM
it is possible, and quite normal that every person has a slightly different set of symptoms form lupus.
our body reacts slightly differently, to...
2 replies | 73 view(s)
10-08-2014, 05:31 AM
hope you have a great day.
2 replies | 60 view(s)
10-08-2014, 04:56 AM
it is strange for someone taking prednisone or prednisolone to be told to limit water intake.
I am not saying it is wrong, .........
7 replies | 173 view(s)
10-04-2014, 05:44 PM
sorry you have had to come here....
but glad you found us.
we have unfortunately quite a few other young ladies of similar...
7 replies | 173 view(s)
10-02-2014, 05:14 PM
glad you are home ...
sent you a private message
3 replies | 109 view(s)
09-29-2014, 11:31 PM
you may find the following thread interesting reading
did you keep a...
3 replies | 136 view(s)
09-27-2014, 05:15 PM
this is the same information, that was shown a week ago ......
the good thing now, ....
is it has started to make the rounds of the medical...
1 replies | 114 view(s)
09-27-2014, 05:12 PM
please tell us a little more about yourself.
your ailment, your family.
2 replies | 100 view(s)
09-26-2014, 06:42 PM
unfortunately, I think it is lack of understanding ......
and next to nobody is really trying to understand it enough.
money is the key ........
2 replies | 116 view(s)
09-26-2014, 06:33 PM
hi, and welcome.
one of the very hard things to fully understand is everyone appears to have slightly different set of symptoms.
and we react...
1 replies | 83 view(s)
09-22-2014, 09:32 PM
there is a few other members here that take benlysta .....
the thing that surprised me is that it take quite a while for it to properly take effect....
9 replies | 177 view(s)
09-22-2014, 05:10 AM
nice to see someone trying to improve our symptoms.
not just focusing on a cure.
I hope the next step of trials starts soon.
1 replies | 68 view(s)
- Date of Birth
- December 2, 1961 (52)
- i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.
i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.
these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).
i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.
my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.
i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).
i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.
i had no staminer, sometimes even raising an arm was an issue.
what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.
the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.
In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
- pinjarra, western australia
- family, horses
- disability pensioner
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.
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View steve.b's Blog
on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!
Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.
All of these things are a cost of having Lupus.
These are not what I am referring to.
As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make