07-01-2015, 12:49 PM
I truly agree with Steve on this one. My cat always comes to me and crawls up on my shoulder so that I have to stop what I'm doing a focus on her. ...
3 replies | 51 view(s)
06-30-2015, 08:35 PM
Karma turned 2 June 14 and now weighs 100 pounds. Big, sturdy and the most loving sweetheart! He has been amazing when it comes to keeping me from...
3 replies | 51 view(s)
06-30-2015, 05:24 AM
Do you see a neurologist at all? You may have to give up driving no matter what. Think not only of yourself but of others. There may come a time...
2 replies | 66 view(s)
06-28-2015, 10:24 AM
Does anyone have problems keeping warm? I came home from church, was comfortable for about a half hour then got really cold. I can not warm up. ...
1 replies | 54 view(s)
06-28-2015, 10:18 AM
Perlina, I am going through tests with a new neurologist. He said it was related to seizures, but can not understand why it is sporadic. Will keep...
11 replies | 418 view(s)
06-23-2015, 04:48 PM
Herron is not alone in the situation, I too am now divorced due to my illness. It wasn't my fault that I couldn't fix my health, but he seemed to...
4 replies | 115 view(s)
06-07-2015, 03:47 PM
Hope is the basis of feeling good and a positive outlook. Hoping for a better day tomorrow is how you get through the bad days.
6 replies | 1134 view(s)
- Date of Birth
- December 2, 1961 (53)
- i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.
i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.
these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).
i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.
my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.
i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).
i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.
i had no staminer, sometimes even raising an arm was an issue.
what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.
the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.
In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
- pinjarra, western australia
- family, horses
- disability pensioner
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.
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View steve.b's Blog
on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!
Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.
All of these things are a cost of having Lupus.
These are not what I am referring to.
As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make