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  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 467 view(s)
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 505 view(s)
  • ruziska's Avatar
    05-12-2017, 07:31 PM
    ruziska replied to a thread New job in Lauri's Lounge
    Almost 5 months now. Confidence growing. Exhaustion still a big problem, especially on Fridays since it's always somebody's payday. I do NOT cook on...
    6 replies | 505 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 505 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 206 view(s)
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13 Visitor Messages

  1. View Conversation
    Just wanted to say IM THNKING of YOU and you are in my HEART.......
  2. View Conversation
    Hi! Was looking for a pic of your knitting tattoo?!?!
  3. View Conversation
    I am so happy to hear about our new job, such a relief for you
  4. View Conversation
    i have you listed as my friend - because you are special.

    merry christmas and thank you for being part of my life.
  5. View Conversation
    just callin gin to say hi.

    thinking of you.
  6. View Conversation
    what part of Montana do you live? I worked on a large powerline that went between Lolo and Missoulla in 1984, good times and yes some of the most beautifull country.
  7. View Conversation
    i have left a link for you.
    hope it helps
  8. View Conversation
    OMG, those pics are gorgeous!!!!!
  9. It's no problem. I sometimes forget to look at my visitor messages too! Kayaking is my replacement for hiking, which I can no longer do. It's something I think many people with Lupus can handle, as it's pretty easy on the body. If you ever buy one, you should look at the Old Town brand, they are made right here in Maine. Very affordable. It gives me the freedom to still get out and explore, and enjoy this beautiful wilderness I call home. I've never been to Montana, but from what you say, it sounds like the next best thing to paradise. Maybe someday I'll find myself there. The mountains must really be a sight.
  10. Hey there,

    I see you are into kayaking. So am I. I have an Old Town Predator 140 with a retractable rudder (I go ocean kayaking mostly). What kind of boat do you have?
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About ruziska

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About ruziska
Married to college sweetheart. 2 grown and married kids, one amazing grandson! Passionate about God, crochet and knitting.
God, knitting, crocheting, kayaking, Kya Superpuppy
Office Manager


"I'm going to get healthy or die trying"


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I Mourn

by ruziska on 04-08-2011 at 09:06 PM
I mourn races not run because it hurt too much

I mourn time not spent with my kids because the meds knocked me out

I mourn the loss of freedom to do the simplest of things like toss a frisbee for my dog

I mourn being too tired to stand up for myself when others were belligerent and arguementive

I mourn losing the "best years of my life" to sickness

I mourn life unlived