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  • Desleywr's Avatar
    08-22-2016, 04:27 AM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    MRI results not back yet but hospital called me in and had 1.5 hr Neuro exam which for one they noted that my left foot has no response when stick is...
    26 replies | 4989 view(s)
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    08-21-2016, 02:20 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    I had the MRI of brain and spine on Saturday and it was supposed to take 30 min in machine but they did it for 50 min I was glad to get out. Can't...
    26 replies | 4989 view(s)
  • Desleywr's Avatar
    08-19-2016, 11:10 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    Off getting MRI now in ten min
    26 replies | 4989 view(s)
  • Desleywr's Avatar
    08-15-2016, 03:31 AM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    Thanks. Today now left eye twitching. Can't swollow nose also paralysed on left side. Now wearing an eye patch which helps and stops the stinging.
    26 replies | 4989 view(s)
  • Desleywr's Avatar
    08-13-2016, 07:30 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    I spent yesterday in ed and have an eye that won't shut full use of my forehead mouth that won't work on the same side left. Pain in left side of...
    26 replies | 4989 view(s)
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    Hi Elly
    Did you get my response? Would you like to meet for coffee on Thursday?
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About rouge

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About rouge
Hi, I am Elly
Living in Western Australia, enjoy the simple things in life. Having lupus, sjogrens, arthritis, coeliac, uveitis, vasculitis, iritis, many allergies, memory issues, ansomia etc... really puts alot into perspective.
I am here to connect with others for support and friendship.
I have tried several medications but gone back to plaquenil, and predisolone to control things, the body is not responding to it as it used to...rituxmab/mabthera was mentioned as a last resort for me (very reluctant to try it) my lupus ranges moderate to severe...i take 400mg of plaquenil and low to high doses of predisolone pending on flares...on a gluten free diet due to having also coeliacs for the past few years...
wa, australia
lupus awareness, art, AFL, coffee, shopping, family, travelling, health and nutrition, nature.


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Recent Entries

Awareness Month is here !!!

by rouge on 05-09-2012 at 10:39 PM
Hello lupies,
I was just sitting here and thinking actually dreaming of being lupus freeeeeee....
I love to day dream sometimes of the day i hear the breakthru news, a cure has been found
Reality hits home soon after and i feel so frusturated because i really want to have the brilliant ideia to somehow get the word out there in a massive way, and capture the attention of someone who is in a position to MAKE a huge difference to research funding, everybit helps no doubt,

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Jobs Best Suited For Lupus Sufferers

by rouge on 01-26-2012 at 04:04 AM
Hello all

Lupus has been part of my life for most of my adult life...with many many challenges like all the WHL family. I had to stop working and realise that my body couldnt cope like when I was healthier...but there has to be some good options out there for people who are chronically ill, i just dont know what?
Has anyone got any ideias...i just wanted to put it out there...

Rituxmab Infusions for lupus ANYONE TRIED THIS recently ?

by rouge on 09-12-2011 at 09:59 PM
I was recently recommended to have this treatment by my immunologist and was wondering if anyone with Mild to severe lupus as tried this treatment?

I am very concerned about the long term side affects...what can i expect?

Updated 02-05-2013 at 10:20 AM by rouge