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    Yesterday, 12:39 PM
    I haven't been on this website in over a year. I was talking with someone on facebook today about it and it made me want to visit :) I've had so much...
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    Yesterday, 12:26 PM
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    Hi Elly
    Did you get my response? Would you like to meet for coffee on Thursday?
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About rouge

Basic Information

About rouge
Biography:
Hi, I am Elly
Living in Western Australia, enjoy the simple things in life. Having lupus, sjogrens, arthritis, coeliac, uveitis, vasculitis, iritis, many allergies, memory issues, ansomia etc... really puts alot into perspective.
I am here to connect with others for support and friendship.
I have tried several medications but gone back to plaquenil, and predisolone to control things, the body is not responding to it as it used to...rituxmab/mabthera was mentioned as a last resort for me (very reluctant to try it) my lupus ranges moderate to severe...i take 400mg of plaquenil and low to high doses of predisolone pending on flares...on a gluten free diet due to having also coeliacs for the past few years...
Location:
wa, australia
Interests:
lupus awareness, art, AFL, coffee, shopping, family, travelling, health and nutrition, nature.

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05-14-2012 01:42 AM
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02-09-2013 03:38 AM
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01-09-2011
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View rouge's Blog

Recent Entries

Awareness Month is here !!!

by rouge on 05-09-2012 at 10:39 PM
Hello lupies,
I was just sitting here and thinking actually dreaming of being lupus freeeeeee....
I love to day dream sometimes of the day i hear the breakthru news, a cure has been found
Reality hits home soon after and i feel so frusturated because i really want to have the brilliant ideia to somehow get the word out there in a massive way, and capture the attention of someone who is in a position to MAKE a huge difference to research funding, everybit helps no doubt,

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Jobs Best Suited For Lupus Sufferers

by rouge on 01-26-2012 at 04:04 AM
Hello all

Lupus has been part of my life for most of my adult life...with many many challenges like all the WHL family. I had to stop working and realise that my body couldnt cope like when I was healthier...but there has to be some good options out there for people who are chronically ill, i just dont know what?
Has anyone got any ideias...i just wanted to put it out there...
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Rituxmab Infusions for lupus ANYONE TRIED THIS recently ?

by rouge on 09-12-2011 at 09:59 PM
I was recently recommended to have this treatment by my immunologist and was wondering if anyone with Mild to severe lupus as tried this treatment?

I am very concerned about the long term side affects...what can i expect?
thanks

Updated 02-05-2013 at 10:20 AM by rouge

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