- Hi, I am Elly
Living in Western Australia, enjoy the simple things in life. Having lupus, sjogrens, arthritis, coeliac, uveitis, vasculitis, iritis, many allergies, memory issues, ansomia etc... really puts alot into perspective.
I am here to connect with others for support and friendship.
I have tried several medications but gone back to plaquenil, and predisolone to control things, the body is not responding to it as it used to...rituxmab/mabthera was mentioned as a last resort for me (very reluctant to try it) my lupus ranges moderate to severe...i take 400mg of plaquenil and low to high doses of predisolone pending on flares...on a gluten free diet due to having also coeliacs for the past few years...
- wa, australia
- lupus awareness, art, AFL, coffee, shopping, family, travelling, health and nutrition, nature.
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- 05-14-2012 01:42 AM
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Showing Friends 1 to 9 of 9
View rouge's Blog
on 05-09-2012 at 10:39 PM
I was just sitting here and thinking actually dreaming of being lupus freeeeeee....
I love to day dream sometimes of the day i hear the breakthru news, a cure has been found
Reality hits home soon after and i feel so frusturated because i really want to have the brilliant ideia to somehow get the word out there in a massive way, and capture the attention of someone who is in a position to MAKE a huge difference to research funding, everybit helps no doubt,
on 01-26-2012 at 04:04 AM
Lupus has been part of my life for most of my adult life...with many many challenges like all the WHL family. I had to stop working and realise that my body couldnt cope like when I was healthier...but there has to be some good options out there for people who are chronically ill, i just dont know what?
Has anyone got any ideias...i just wanted to put it out there...
on 09-12-2011 at 09:59 PM
I was recently recommended to have this treatment by my immunologist and was wondering if anyone with Mild to severe lupus as tried this treatment?
I am very concerned about the long term side affects...what can i expect?