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  • tgal's Avatar
    04-06-2014, 01:20 PM
    First let me say welcome to the WHL family! We are glad you found us! Next I have to say that those last two post are exactly the kind that brought...
    3 replies | 70 view(s)
  • tgal's Avatar
    04-05-2014, 01:20 PM
    Hello and welcome to WHL! We are so very glad that you found us. I am so sorry you are having a hard time but sadly it often takes us a long time to...
    2 replies | 45 view(s)
  • tgal's Avatar
    03-23-2014, 06:56 PM
    Hi Alopez. I wish I could answer that question for you but it isn't that simple. There currently is no single test for Lupus. That blood work will...
    2 replies | 93 view(s)
  • tgal's Avatar
    03-22-2014, 04:59 PM
    tgal replied to a thread Tapering and anxiety? in Lauri's Lounge
    The answer is yes and no. Yes if it is acting up at the moment but often times the problem is that it is a problem of irregularity in how it is...
    4 replies | 86 view(s)
  • tgal's Avatar
    03-22-2014, 04:44 PM
    Wonderful advice we try to give often! Don't ever let someone ignore yoy when you know you are sick! So glad you listened to your body! Take care of...
    2 replies | 97 view(s)
  • tgal's Avatar
    03-22-2014, 07:11 AM
    Sorry i am so late in welcoming you! We are really glad that you are here. Make yourself at home and I look forward to getting to know you!
    8 replies | 184 view(s)
  • tgal's Avatar
    03-22-2014, 07:02 AM
    Hello from a fellow Texan! I love the "don't make Marvin mad"! LOL Very true! Texas is hard on Lupus, some parts worse than others. I am glad you...
    5 replies | 136 view(s)
  • tgal's Avatar
    03-22-2014, 06:58 AM
    When you say "get sick" do you get diarrhea? I ask because I know many suffer with this and often it is caused by the removal of the gallbladder. It...
    7 replies | 158 view(s)
  • tgal's Avatar
    03-22-2014, 06:49 AM
    tgal replied to a thread Tapering and anxiety? in Lauri's Lounge
    I'm going to give you an answer you most likely don't want to hear. Talk to your doctor. I dealt with this for several years before they figured out...
    4 replies | 86 view(s)
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3 Visitor Messages

  1. Thank you for welcoming me, I have friends that I talk to but none really seem to understand totally. They don't say it but I feel like I'm driving them crazy with all my complaints. I am a single mom of two girls, 10 and 6 and taking care of them and dealing with my pain daily has taken a toll. I do my best to not let them see me hurt, so for the most part I keep it all in. I'm hoping to find friends that know the feeling and understand the frustration of dealing with it daily. I can't take anti inflammatories to help the pain, and only allowed 1 Tylenol every now and then, all of those OTC pain relief meds can set off SJS again and danger me more than help. Again thanks for welcoming me and I hope to finally find some peace.
  2. I'm so glad to have found this website, some days I feel like I'm losing my mind. I haven't had an actuall diagnoses of SLE yet but this time last year I developed Stephen Johnson Syndrome and was tested for SLE by the Dr taking care of me. My dad has Lupus and those with Lupus have a higher risk of developing SJS, that's why I was tested. That test showed I had Lupus, they wanted me to wait 6 months or more for another test, SJS could have affected the results. Well ever since all that I have had so many problems ranging from bad headaches to joint paint and body stiffness to constant congestion making it hard to breath or catch my breath, chest pain, goes on and on. I'm not sure if all this o's caused from Lupus or lingering affects of SJS/TEN. I feel like I'm going crazy, all I do is cry cause the pain is so constant. I go the first week of January (when my insurance starts) for another test. I just want peace of mind, if it is Lupus.*
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    Hi leahm. Welcome to WHL! We are so glad that you found us. Please feel free to look through all of the old threads or start new ones if you wish. There are wonderful people here who will be glad to help, support or just talk with you whenever you need it. I am looking forward to getting to know you
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About leahm2

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About leahm2
I am a 31 year old mother of 2 beautiful daughters, I'm a single mom and love meeting new people
reading, watching movies, spending time with my girls


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