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    Hello sarah, sorry for taking a while doing that blog, i'll get my hubby to take the shots after and i hope your ok healthwise. Love Terri xxx

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    Sorry about the late reply, but my holiday is spent recovering from my operation, so all the plans I had are out the window.
  3. Hi Linda, I'm just grateful the holidays are over and I've offficially put everything away. I thank God when I energy to get those kinds of things done. Trev ( my son) and I have to do things on the fly since my health changes daily. Saturday I literally slept 20 hours. Fortunately, Sunday we were able to do some after Christmas shopping and get the house put in order.

    What about your family? How was your holiday?
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    The new year is here, and new adventures to pursue. What have you and your son planned for the rest of the holidays?
  5. Hi, I was just wondering about how you are doing today. I hope you are getting through your day OK. I think you have a good idea with the therapy. It has definitely helped me through some of my worst times. Say hello when you can, and know that I am thinking of you.


    By the way, I love your cat photos! I have three cats too. There is an album with pics of them on my profile page.
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    Hi Sarah, just checking in to see how you are. Did you son have a good Christmas and get the presents he wanted?
  7. Hi there - I hope you had a good holiday. I've actually felt better over the past week than I have in many months. However, I've had the malar rash everyday and when I "hit the wall" I'm absolutely done. Tomorrow I get the results of my many blood tests. They called last week to say they got the results and want me to come in to go over them. It's a little scary but then it could turn out to be nothing. Do you guys ever get these not quite dime sized bumps on your body, particularly during a flare up? I noticed on Christmas that I suddenly had about six of them. My sister in law even noticed.

    Oh well, I'll find out more tomorrow and I thank you so much for checking in! That's so sweet and very much appreciated. I hope you had a good holiday. No matter what, we have to celebrate every chance we get!
  8. View Conversation
    Hi Serand,

    I just wanted to stop in and say hello. I have missed seeing you around and hope you are feeling better. Please let me know if you need anything. We are always here for you
  9. Hi, I was just going to write you. I'm actually seeing a second rheum this Friday. I know something's up. My mental capacity is diminishing at a troubling rate. I'm writing down questions so I don't forget and I will take my folks because they have good questions.

    My big questions is, how did the psych eval go? I promise I don't want details, just kind of an idea of what to expect. I got called by my caseworkrt and returned the call and I assured her I'm totally on board. Frankly, I'm pretty sure I'm going crazy. This would simply be confirmation. I'll keep you posted. Take good care!
  10. View Conversation
    Hey There,

    I just wanted to stop by and check on you. Sorry the test results didn't give the answers you wanted. I understand how that is. Mine never cooperate either! Just remember we are here for you whenever you need us!
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About serand4

Basic Information

About serand4
Still working on the correct diagnosis. I'm 47, single mom of a great 16 year old boy. Currently waiting impatiently for disability as there is no way I can work at this time. Love to laugh and meet interesting people. Can't wait to get this disease under control so I can do those things again.
St. Louis
Writing, animals, reading, learning about this disease and others like it.
Graphic designer, writer but I can't work right now.


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Recent Entries

Way too much pain

by serand4 on 09-25-2012 at 04:53 PM
Maybe it's good, maybe it's bad, but writing helps ease some of the pain from my legs and arms. I had a good day but tonight it rained and cooled off. Maybe my joints just can't take it. I've spread pain relief lotion from my knees to my ankles and my feet have their own creams. Praise God, the Tylenol helps my hands. I was taken off of narcotics for my fibro about a month ago and usually, it's not problem, but tonight, I wish I could just apply something to the pain! I also thank God that

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Things could be looking up

by serand4 on 09-19-2012 at 07:14 AM
It was pretty gloomy for awhile where my health was concerned. Out of all of the crazy things happening to me, the 3:00pm shut down is the worst! I'd get quite a bit done and then 3:00pm hits and I have to make sure there is a bed nearby. God forbid that I'm behind the wheel. I blare my radio, open the windows and if that doesn't work, I will pull over. Mostly, I try to make sure I'm not out and about.

But my bladder seems to be working again - Praise God! I won't lie, the catheder

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Silver linings and lead weights

by serand4 on 09-12-2012 at 10:02 AM
This past four years of fighting one pain disease after another has taken it's toll. It does on all of us but I can't speak for others, only me. I went from a vivacious, outgoing, on the move mom to a couch potato who can't remember if she ate that day. My son, now 18, has had to watch the EMTs take me away numerous times. He's lifted me from the kitchen floor after a seizure when I can't use my lips to speak clearly. My blood pressure runs from 90/60 to 180/115 -- never any idea what it

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I give up on this Lupus thing

by serand4 on 07-29-2011 at 04:08 PM
I've been fighting for a year to make any headway with this Lupus diagnosis. I have numerous symptoms but I don't have the numbers so therefore, I'm unqualified. I get hospitalized but since the numbers don't show up, I just look like the junkie off the street. And that's funny too because I receive far too much medication already.

In the next month I will be seeing a Pulminologist, cardiologist, gastrologist, psychiatrist, and my primary. Somehow, I just don't have much faith.

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Just a tough day

by serand4 on 03-30-2011 at 09:54 AM
I have to admit that I'm getting tired of the progressive nature of this disease. Months ago it was all about the rash on my face and then the endless fact-finding mission to figure out what I'm dealing with. Now, several months later, many hospitalizations and doctors appts later, I wish I was just back to the red face! Forgive me for the rant, but here it comes...

I am so tired of being tired! For a couple of years it was just going back to bed in the morning after my son was

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