03-01-2014, 08:06 PM
Welcome to WHL! I hope someone comes along soon that can help. I know any kind of stress and/or surgery can be very difficult on us physically so...
5 replies | 77 view(s)
03-01-2014, 08:03 PM
Things have changed even since they FINALY officially diagnosed my CNS 6 years ago. Oh how I wish things had been as they were in the article above!...
8 replies | 123 view(s)
02-18-2014, 01:19 PM
It very well may be the meds HOWEVER you really should contact your doctor to make sure. Don't mess around with things like that until you know. You...
3 replies | 78 view(s)
02-18-2014, 01:13 PM
I have never taken it. Sorry. Hope someone comes along that has
4 replies | 104 view(s)
02-18-2014, 01:12 PM
It is one of those things that is different with different people. For some one drug works great while it doesn't on others and vice versa. Just like...
2 replies | 75 view(s)
02-18-2014, 01:08 PM
Hello and welcome! I am so glad you joined!
Your post actually ally made me tear up a bit because this is the reason I came to WHL and it is the...
4 replies | 87 view(s)
02-18-2014, 12:53 PM
We'll hello and welcome back! We are glad to have you with us again!
6 replies | 116 view(s)
02-13-2014, 12:39 PM
I just wanted to welcome you to the family. We understand what you are going through and how scary it is. Please make yourself at home and know that...
2 replies | 77 view(s)
02-13-2014, 12:36 PM
I don't have much to add to what Susie said but I did want to welcome you. I know the meds are scary but they are not near as scary as what the...
2 replies | 72 view(s)
02-13-2014, 12:32 PM
I would like to add to what Susie said so wonderfully.
For a few of us Lupus can affect the hormone release in the brain just as it affects the...
2 replies | 67 view(s)
02-13-2014, 12:24 PM
You poor thing! Sadly we hear your story so often and I myself lived it. I was called "a strange case" because I had more than enough symptoms, a...
2 replies | 69 view(s)
02-13-2014, 12:16 PM
Hi there. Sorry but I did not see this!
i get two kinds of "bumps". The ones from my discoid lupus do not hurt and the ones I get now in my head...
4 replies | 136 view(s)
02-13-2014, 12:10 PM
Anything that has been around that long needs to be looked into. If it begins to swell, turn red at the site or get hot you should go to...
1 replies | 61 view(s)
02-12-2014, 09:58 AM
Hi and welcome to WHL. I am so sorry that you needed to find us but since you did I am glad you are here.
I wish I had time to talk to the things...
4 replies | 126 view(s)
02-11-2014, 09:54 PM
Although i can't work now there are some things that may help.
1. If you work under fluorescent lights always wear sunscreen (and reapply often)....
6 replies | 153 view(s)
02-11-2014, 09:40 PM
Hi and welcome to the WHL family. I am so sorry for all that you have gone through and hate that you are dealing with shingles now.
2 replies | 68 view(s)
02-11-2014, 09:37 PM
So good to see you again and so very glad someone listened! Talk to the doctors about Topamax. It helped with my migraines quite a bit. Please keep...
7 replies | 155 view(s)
02-11-2014, 09:33 PM
The advice you have been given is good. Food seems to taste really good on the steroids so just make sure you keep healthier things around and not...
4 replies | 163 view(s)
- Still working on the correct diagnosis. I'm 47, single mom of a great 16 year old boy. Currently waiting impatiently for disability as there is no way I can work at this time. Love to laugh and meet interesting people. Can't wait to get this disease under control so I can do those things again.
- St. Louis
- Writing, animals, reading, learning about this disease and others like it.
- Graphic designer, writer but I can't work right now.
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View serand4's Blog
on 09-25-2012 at 04:53 PM
Maybe it's good, maybe it's bad, but writing helps ease some of the pain from my legs and arms. I had a good day but tonight it rained and cooled off. Maybe my joints just can't take it. I've spread pain relief lotion from my knees to my ankles and my feet have their own creams. Praise God, the Tylenol helps my hands. I was taken off of narcotics for my fibro about a month ago and usually, it's not problem, but tonight, I wish I could just apply something to the pain! I also thank God that
on 09-19-2012 at 07:14 AM
It was pretty gloomy for awhile where my health was concerned. Out of all of the crazy things happening to me, the 3:00pm shut down is the worst! I'd get quite a bit done and then 3:00pm hits and I have to make sure there is a bed nearby. God forbid that I'm behind the wheel. I blare my radio, open the windows and if that doesn't work, I will pull over. Mostly, I try to make sure I'm not out and about.
But my bladder seems to be working again - Praise God! I won't lie, the catheder
on 09-12-2012 at 10:02 AM
This past four years of fighting one pain disease after another has taken it's toll. It does on all of us but I can't speak for others, only me. I went from a vivacious, outgoing, on the move mom to a couch potato who can't remember if she ate that day. My son, now 18, has had to watch the EMTs take me away numerous times. He's lifted me from the kitchen floor after a seizure when I can't use my lips to speak clearly. My blood pressure runs from 90/60 to 180/115 -- never any idea what it
on 07-29-2011 at 04:08 PM
I've been fighting for a year to make any headway with this Lupus diagnosis. I have numerous symptoms but I don't have the numbers so therefore, I'm unqualified. I get hospitalized but since the numbers don't show up, I just look like the junkie off the street. And that's funny too because I receive far too much medication already.
In the next month I will be seeing a Pulminologist, cardiologist, gastrologist, psychiatrist, and my primary. Somehow, I just don't have much faith.
on 03-30-2011 at 09:54 AM
I have to admit that I'm getting tired of the progressive nature of this disease. Months ago it was all about the rash on my face and then the endless fact-finding mission to figure out what I'm dealing with. Now, several months later, many hospitalizations and doctors appts later, I wish I was just back to the red face! Forgive me for the rant, but here it comes...
I am so tired of being tired! For a couple of years it was just going back to bed in the morning after my son was