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    Hey Slim-
    Just wanted to check in see how you are feeling. I haven't been on line in a week or so. I don't know if it is the weather change or what but I have had a terrible headache, and just general malaise. Not feeling so great, hope this finds you in a better place.
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    Hey Slim. Not sure if you read it or not but Rob is going to check with SaySusie and make sure it is OK. If she says yes then we will check times that people can be there and work out a schedule. Thank you SOOO much for being willing to help with this. Hopefully this will bring us all a bit closer
  3. View Conversation
    Thanks for the hug slim, everyone needs one of those. My daughter has been a big help to me, and she still is but she is sixteen now so there is a lot less time for talking with mom.
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About slim

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About slim
I am a 32 yr.old female. I was diagnosed with SlE in 2005.
reading and music


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08-26-2012 11:51 PM
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02-04-2014 06:07 PM
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Recent Entries

Benlysta round 2

by slim on 06-26-2011 at 09:10 PM
Hello everyone,

Had my second dose of Benlysta on Monday and not sure if these new side effects are lupus or Benlysta related but will continue with my scheduled third dose on 7/06 and Ill see if these side effects continue. Here are the side effects I have experiencing abdominal pain, twitching of my right arm and right middle finger, pain shooting down my left leg everytime I stand up from a sitting position, limbs feel heavy, and lots of pain from my flare up not sure if the med

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Had my first Benlysta treatment

by slim on 06-08-2011 at 07:28 PM
Hi everyone,

I had my first treatment of Benlysta on 06/03/11 and it went well, up until I got home and had some dizzy spells. Wont let a few dizzy spells stop me from continueing with the treatment. So here is how my weekend went, had severe abdominal pain, lots of joint and muscle pain to the point i was ready to put myself out of my misery but I self medicated and was able to get the pain somewhat under control. I cant say for sure if it was the Benlysta or my Lupus rearing its

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im finally posting

by slim on 02-03-2011 at 05:38 PM
Hello everyone Im not one to post (actually i think i only posted once)but i felt like talking so what the heck. Last year was tough lots of flares er visits , surgery and coping with depression and all the other crap that comes with this illness. This year so far more flares needing IV solu-medrol (500mg ) palm of my hands especially the right hand was extremely dry peeling and felt like sandpaper and would turn red as a tomato and white. It didnt look right, anyway saw the dermatologist and he

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Scariest week ever!!

by slim on 07-27-2010 at 07:44 PM
Quote Originally Posted by slim View Post
Hi fellow floridian

I can understand what you mean about a rough week this year is what i call hospital year. Last vist in june had to be wheeled out of my Rheumatologist office to the Er after getting IV because the pain was so great I couldn't move. Prior to that went to the ER for flare up and pain radiating down my left arm which i couldn't move and found out that I
had two disk in my neck that were basically mush and had to have surgery two days later so I wouldn't end

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