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    Slim the scare dow bother me mate i was having the crack refering frankenstein, i've got one across my throat where a lump was removed by the surgeon i've saw today.
    I'll most likely drop off later while reading it's my way of chilling out and they always have to contain a good love story.

    You get some good sound rest mate. xxxxxxxx
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    Hi Slim so glad third has come. just lifted prayer up for you. Biopsy was awful but I now wait two weeks for results. ugh This gets old fast.
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    Hi Slim,
    I've just done another thread mate another op due on the 4th and i hope your treatment is ok with other operation i had the bleeding as stopped now and it's been a month but you don't fully recover till after 3mths and no lifting well that's a joke in itself mate.
    I've had no seizures today and like yourself i'm worn out but mainly sleep after teatime when i like my reading.

    You get a good rest and thinking of you dearly where your meds concerned. xxxxxx
  4. View Conversation
    Hello Slim,
    I'm on a right combination for my seizures but they have to be careful with the amount they give me and what new meds they add because my seizures break worse, i used to have over 18 a day but they've slowed down and sometimes i come out paralised having the todds-paralsis besides but for painkiller it's paracetamol and iburophen in high dosages but when i have a seizure it severe cramp pain and my hubby said you don't come round for ages.

    I cope slim but having the Lupus and what goes with it as shocked my system more than anything and you can do without it with other issues ontop.

    I hope your ok and have a less pain free day mate. xxxxxx
  5. View Conversation
    Hello dear girl. Yes I am a mess too. Many of us are. Wednesday I pray the specialist does a biopsy and I can soon get this uterus OUT! The pain and stress triggers everything else.

    Boy raspy voice and runny nose sounds like you picked something up in your weakened state. So very sorry. Let's see I spent my fouth in the ER. Lol and then came home and slept. Terrific haugh? Misery does love company.

    I am off to bed now. I am pooped. I hope you don't get too terribly sick. Take lots of C with that iron. Very important I'm sure you know. (((hugs)) Tammy
  6. View Conversation
    Oh Slim I'm so sorry you are in such bad shape. Slim I had a lymph node under my ARM swell to 6 cm in 4 days time. It was horrible.

    I'm so very sorry you are in such pain and not sleeping to boot. Ugh this road sure is rough right now for many of us.
  7. View Conversation
    The bleeding is easing now but the pain is terrible and my concentration is up the wall and lastnight to top it had a seizure that throwed me all over the place when i came around my hubby soon made me go to bed and i dow feel much better for it this morning.

    Dow long down on the bad side refering the nodule, let them find out first mate but i wish you the best off luck. xxxx
  8. View Conversation
    Hello Slim,
    I am sorry to hear what you went through and on my gandaughter's life i've had these symptoms and still do refering my lungs and they eye trouble but nobody as run a cat scan on me for years and it's been 3-4yrs since an mri scan as been done to check my skull and brain, i have got a crap rheumo though and even my own gp said the lupus is high with my lungs and smoking dow help. Slim the nodule they've found can come from a number of things pulmonory, cancer, lung disease etc mate,they tested me at the doc's for 2 types of lung disease i failed the tests my lung capacity is'nt strongenough no more.

    My psychiatric doctor and dermo are going mad through how slow my rheumo is with me because of the sle and my organs.

    Love Terry xxx
  9. View Conversation
    Hello Slim,
    That's alot of side affects mate if it is the drug you just be very careful, that's the trouble with this disease if you have it to bad you don't know if it can be drugs or the lupus giving you extra pain.
    I've been ok on the plaquenil this time with my breathing since taking it at night time like linda suggested but my liver ain't have giving me some stabbing pains and i'm living on water which i can't stand and to top it all it was in the 80s yesterday and 90s today i can't sit out now at all but in the home is even hotter, i'm still losing blood from the operation so god knows when that will stop but besides everything...i'm still here and alive and kicking.

    If those affects get worse dow mess about see your doc mate and all my love Terry xxxxxxxx
  10. View Conversation
    Oh my word that's horrible! I would call the pharmacy with my list of how it affected me , so they will try harder or switch pharmacy. I had a similar experience with lyrica. Once on it, if you go off quickly it causes seizures. My PCP helped me quickly. Thank God.

    I am a mess. Lol . It's 1:30am as I write this. Cymbalta helps but each night I awaken and can't fall back to sleep, as the day goes on the spasms and nerve pain are a 10.
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About slim

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About slim
I am a 32 yr.old female. I was diagnosed with SlE in 2005.
reading and music


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Recent Entries

Benlysta round 2

by slim on 06-26-2011 at 09:10 PM
Hello everyone,

Had my second dose of Benlysta on Monday and not sure if these new side effects are lupus or Benlysta related but will continue with my scheduled third dose on 7/06 and Ill see if these side effects continue. Here are the side effects I have experiencing abdominal pain, twitching of my right arm and right middle finger, pain shooting down my left leg everytime I stand up from a sitting position, limbs feel heavy, and lots of pain from my flare up not sure if the med

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Had my first Benlysta treatment

by slim on 06-08-2011 at 07:28 PM
Hi everyone,

I had my first treatment of Benlysta on 06/03/11 and it went well, up until I got home and had some dizzy spells. Wont let a few dizzy spells stop me from continueing with the treatment. So here is how my weekend went, had severe abdominal pain, lots of joint and muscle pain to the point i was ready to put myself out of my misery but I self medicated and was able to get the pain somewhat under control. I cant say for sure if it was the Benlysta or my Lupus rearing its

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im finally posting

by slim on 02-03-2011 at 05:38 PM
Hello everyone Im not one to post (actually i think i only posted once)but i felt like talking so what the heck. Last year was tough lots of flares er visits , surgery and coping with depression and all the other crap that comes with this illness. This year so far more flares needing IV solu-medrol (500mg ) palm of my hands especially the right hand was extremely dry peeling and felt like sandpaper and would turn red as a tomato and white. It didnt look right, anyway saw the dermatologist and he

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Scariest week ever!!

by slim on 07-27-2010 at 07:44 PM
Quote Originally Posted by slim View Post
Hi fellow floridian

I can understand what you mean about a rough week this year is what i call hospital year. Last vist in june had to be wheeled out of my Rheumatologist office to the Er after getting IV because the pain was so great I couldn't move. Prior to that went to the ER for flare up and pain radiating down my left arm which i couldn't move and found out that I
had two disk in my neck that were basically mush and had to have surgery two days later so I wouldn't end

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