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    i have not heard from you for a while.
    hope you are keeping fairly well.
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    Happy Birthday, hopefully you are well.
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    The sleep problems are probably just from the steroids themselves. Im still not sleeping well. How long have you been on the steroids? When I was on prednisone for a week and saw no improvement we had to do an IV infusion for 3 days then start on 32mg medrol because my body wasn't using the prednisone right. Maybe its the same case for you? I dont know if steroids take effect at different times with different people but its a thought. I hope you figure it out and feel better soon!
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    Im on 12mg of medrol right now ( I just lowered from 16mg). I started out on 32mg of the medrol on March 19 and have started slowly going down on it. I am on 2000mg of Cellcept a day and I've been on that a week longer than the medrol. I started feeling better (but not 100%) probably 3 weeks after I started the meds. But in with all that I had 3 IV infusions of high dose steroids. My doctor had me cut my steroids in half (BIG RISK) a week or two after I started the medrol because I was having bad side effects from the high dose. Since then she's only just last week let me go down another 4mg. The biggest problem still for me is I haven't been sleeping well because of the steroids and my brain fog is TERRIBLE. I hope I answered your questions and I hope you start feeling better =)
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    I cant really say for sure because I'm also on medrol. I had really high dose steroids which helped and I started Cellcept at the same time. My doc put me on both at the same time because steroids work quickly and Cellcept takes time. She's going to slowly take me off the steroids and then leave me on the cellcept once its built up in my system. I'm sorry you're not feeling well!
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    Sorry about you flaring again, hopefully you had a great time when you were well. I am slowly getting better and getting used to the fatigue and aches and pains. I haven't finished Christmas shopping yet, but I will get it done. How is home life for you? Are you still living with your parents?
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    Sarah I saw that you posted a few posts today. I haven't heard from you for a while. How are you? Hopefully your have been having a wonderful time while you have been away, and not being really really sick (which I suspect you have been). Take care....
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    Hi Sarah, take care .... Linda
  9. You know how it is. Like you said, same s**t , different day! Hey, I read your post about the chills and night sweats. I get that whenever I have an IV infusion of Methylprednisolone. It sucks because it also causes insomnia. If you are taking any sort of corticosteroid, that could be the cause.

    I see your new avatar. It's nice to put a face to the name.

    Rob
  10. Hello. Im doing ok..ya know same s*$^.lol. Sick and tired of feeling sick and tired ..How are you?
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About Sarah2010

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Date of Birth
June 6, 1984 (30)
About Sarah2010
Location:
SW Florida
Interests:
Running, working out, painting..
Occupation:
waitress and artist

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