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    my hands and feet feel like they are on fire too. Feels like i am holding them in a hot oven. How did you take the surface temp.? I have never tested mine. Yesterday was pretty yucky, but got through it and today was a good one. I am so sorry for all of your suffering. When we have those flares that just go on forever, it becomes intolerable to wait them out. No one knows what we go through.
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    Thank you for the "welcome back"....It is good to be home, even though vacation was absolutely wonderful.
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    please, don't ever feel like you have to apologize to me. You are always asking about me, so, no worries. I took my shot last night, so today is my "weekly vacation". I get to spend the day in bed dealing with mtx side effects. Oh, i so wish your dr. could find something that will help you. My hands and feet get really hot, but i have never had to take an ice bath to control it. I guess, i just live with it. I never know if it is fibro or lupus that causes that pain. It feels like my hands and feet are being stuck into a hot oven....really sucks. are you feeling better today? if i could, i would wiggle my nose and your problems would go away for at least one day....you deserve a break, and i hope it happens really soon.
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    have you told your dr. about this. When i get into a flare and can't get out, my dr. gives me a medrol injection, and i feel better very quickly. It is so difficult, and is way too much for us to handle on our own. Hang on girl, hopefully better days are coming.
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    so sorry you had a bad day yesterday. Are you feeling better today? I am sorry, but i forgot how long you have been on plaquenil - how long ago did you start.
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    yes, mtx is a nasty medicine, but it really does help. You were on it for 8 years? My dr. said i could stay on it forever as long as organs don't get involved. How are you feeling today? I am glad you are starting to get some relief. Now, if the meds will only start helping with your fatigue. So sorry you had to go on prednisone. But, if it helps with pain and inflammation, then it is a good thing. Hope you are able to taper off pretty quickly.
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    hi, thanks for getting in touch with me. I am glad that the Plaquenil is working. I hate having to take such drastic medication, but they work, and I feel better. Are you doing ok with everything? Starting a new medication is a major crossroads of this fight for our lives. (Sorry if i am not making any sense, i took my mtx shot a couple of hours ago, and it affects my thinking ability for a few hours). Hope you are having a nice evening.
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    AWWWW, NO FISH huh! Oh well, at least you had the FUN trying! I LOVE how you and your hubby LOVE the GREAT OUT DOORS! I JUST LOVE how PRETTY your cat is on the red bedspread! Being white makes the pic that much more BEAUTIFUL! XXXXXXXX
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    hi jennnifer glad you feeling well i love fishing don,t give up trying to have kids i know its hard i had 3 kids and a stillborn and 4 miscarriages you never know what will happen my husband and i discussed if we could not have children we would be happy to adopt is something you would consider . also i am on tablet they will not give injection for people with lupus
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    hi jennifer just checking in see how things are well having day in bed today side affect of mexotrexate glad to see you have made friends now we will be all here for your good days and bad my friend if just want to chat pm at any time hugs kim l
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Recent Entries

depressing moments

by smokerscat94 on 01-08-2010 at 02:49 AM
My migraines seem to be getting more intense and more frequent, I don't know how much more I can take? They have been absolutely dibilitating! I was once again a patron of the ER last night. The Dr. of which I know pretty well is a very caring and understanding person. Blessing I know!!! I told him I felt like I could see, hear and feel my pulse all over my body. I told him to put his hands on my fore head and feel my pulse, he did and he felt it. He said that the blood vesels were dialated which

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sick and tired of being Sick & Tired!

by smokerscat94 on 10-27-2009 at 01:47 AM
I am so exhausted, but yet I can't sleep. What's up with that? I am so tired and so sore all the time. It SUCKS THE BIG ONE! It's really hard to think positive when I feel like this nearly every day lately. I want to feel NORMAL, I want to be able to do the things I want to do. I want to be able to GET OUT OF BED! I am really frustrated and depression is kicking my butt! I just want to have more good days then bad days. It just doesn't seem like that happens much anymore. I have absolutley no energy

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