• ashleybaby715's Avatar
    08-16-2014, 04:59 PM
    I was so excited today to find out that there is a lupus walk coming to pittsburgh in september! I want to try to raise as much money and...
    0 replies | 54 view(s)
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    How are you? We have lots of snow n its cheered me up.How you feeling and when do you get the rest of your results?xxxxxx
  2. hehehe... wrong spot
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    Congratulations in passing 2 of them n goodluck with the other two.Hope your cold has gone,ive had a sinus type of head cold witha cough,but much better now.You enjoy your trip,just enjoy yourself.I laze about allot lately too,hope soon i can get ut n change my life for the better.Hey yes mine is Angel1.oliver@hotmail.com
    YOu take care n i'll catch up with you soon.Jaw did ease but is throbbing a bit today,but hopefully it will go away.Hope you are all set for christmas.Its snowing here today yipeeee hope it stays for next week.xxxxxxx
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    I am so glad your leg is a little better.I will have to try the ice pack on my knees and elbows,i always used a hot water bottle,so yes i will try it.My jaw aches so bad right now as it locked again the other day,so it usually takes a few days for it calm down.Its a long story which i will tell you about one day but not now lol.
    Have you told your doctor,maybe he can try other meds for you? Ive tried lots but if one med doesnt work,i stop it then try a new one until i get 1 that will help me. I wish it would go away permenant for you also.How has your day been today? Hope you have been ok.Ive not done much really,just lazed a bit.Catch up with you soon.Thinking of you.xxxxxxxxx
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    oh it defnetly is alottt better!
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    haha. with me, i forget what i'm talking about mid-sentence! or like, i'll go to say something, then blank out. it sucks! and yeahh i was pretty bad..but i'm doing ALOT better. all thanks to the kajillion pills i take a day! lol
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    That's lame that they don't know what to do. Maybe try some Absorbine Jr. for some temporary relief? I use it when my joints or legs are being particularly evil and it helps quite a bit for me. It's a lot more effective than Bengay.

    You don't have to thank me. But I'm glad I could give you a pick-me-up. =]
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    well i was diagnosed January 12th of this year. but all of december is just a blurr to me. i slept NON stop, sore and swollen ALL OVER, hurt to breathe, a little hair loss...all together tho, lupus has caused me to be anemic, have arthritis, fluid around my heart and lungs, kidney inflammation / proteinuria. uhm, and now like memory and speech problems. but im sooo much better then i was...even tho it doesn't sund it? hahaha
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    hey!
    yeah its def. nice to meet new people, especially ones only a year older then me !
    yeahh lupus, sucks!! but i mean, theres nothing we can do but fight i guess. lol
    so what all does lupus do to you?? i'm ashley btw :]
  10. View Conversation
    Hey, wolfwhisper.
    I just noticed that you replied to my little blog post, and its lame that you can relate. No one should know that feeling.
    I'm sorry to hear that your right arm has been plaguing you. Have you spoken to your doctor about it?
    Hopefully, the pain subsides soon. =[

    Hope you're feeling well
    <3
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About wolfwhisper

Basic Information

About wolfwhisper
Biography:
I am 20. Was diagnosed with DIL when I was 3 (youngest recorded at All Childrens at the time), which turned into DLE. Need to get another "official" diagnosis.
Location:
Florida
Interests:
listening to music, sleeping,fishing, reading, drawing, hiking, and watching movies with my parents
Occupation:
Looking, but for now, just a "normal/healthy" college student

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"I know God will not give me anything I can't handle. I just wish he didn't trust me so much"- Mother Teresa

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View wolfwhisper's Blog

Recent Entries

Annoyed and Confused

by wolfwhisper on 05-21-2010 at 07:13 PM
Today I got the blood test back. the doctor mentioned hypothyroidism, but my dad said that it is "only the symptoms". How do symptoms come from a blood test? I'm so lost. I don't know what to think anymore. On the perscription for the meds, I saw the letters TPO. I don't know if it's supposed to mean if I have it or if it's only the 'symptoms'. If I don't have Lupus (as I only have an Unofficial diagnosis from a long time ago), and I don't have hypothyroidism, then what the heck is wrong

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Want a new test done!---Ranting because I need to

by wolfwhisper on 01-26-2010 at 10:30 PM
I want to get a new test done for Lupus. I'm tired of beating around the bush, and my mom is saying that it might be fibromyalgia instead of lupus. I just want a diagnosis! At least if it's Lupus, I know how to deal with it! Why can't the doctor put something other than 'connective-tissue problems' on the stupid referal?! Please excuse my ranting, but I feel like I'm going nuts! 15 years of 'it might be Lupus' already has my hopes up of a diagnosis, but no! No more blood tests since I don't have

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Updated 01-26-2010 at 11:01 PM by wolfwhisper

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Sick and I don't know why

by wolfwhisper on 01-17-2010 at 09:36 PM
Alright. I don't think it has anything to do with Lupus, but it gives me flares so I'm not sure.

Before I start, I missed my antidepressents for a few days and my OCD meds for 3 days. Missed about a week before, and had no ill symptoms, just down days. Trying to keep the fact that I don't feel well from the others here. I'm not home, so I can't go see a doctor, and I don't want to bother everyone else here again.

Here it goes:
For the past several months, I've

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Just great-- Ranting

by wolfwhisper on 12-21-2009 at 10:29 PM
I just got over asore throat about a week ago, and ended up with another one (The last two this week have only lasted a day or so though. Thank goodness).Then, the pain in my arm subsides for a bit and has come back again.

At the moment, I'm mad at All Childrens for destroying my records from 10 years ago (since I really need them now of all times) . Need them for my doctor. Now I have to go through all the crap again. This time I hope that they test me during a flare so

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Updated 12-23-2009 at 09:23 PM by wolfwhisper

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One ends and another begins; for now

by wolfwhisper on 09-01-2009 at 06:44 PM
Got a massage that usually relieves pain. Unfortunatly, my legs hurt when I walk now. It makes no sense.
Maby I sprained the muscles? It's a good thing that I use the elevator at school.
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