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    I didn't see the red cross but I am not going to ask the red cross to take me somewhere. There are people that need them much more. I am fine, Sandy. My daughter gets me to appointments I just can't go for things that come up or that need daytime appointments. You were wonderful but please don't worry
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    Good Morning! Yes I did and that was so nice of you! Each vehicle stays in the same county and my doctor is in another county. It was so kind of you to do that! I feel so glad to be able to call you a friend
  3. I got your message. Are you still having problems?
  4. Hi Sandy..we move to the west coast April 2010 and was fortunate to be able to sell our home in SC....I miss our many ,memories of us, but we missed Seattle. I will stay holed up here in Seattle..I just have to move because the lease is up on our rental and the owners have it for sale. Thank you for your prayers and thinking of me. I think I am pointed in the right direction, but I know a rough terrain still lies ahead. I will be okay...gazillions of people had been on the same journey and have come out alright, sometimes better than before for some. I think I will one of those....OX
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    She is getting some better. Her shingles are better. But it caused her nerve damage. So taking her to physical therapy. But dealing with her age related memory loss is so hard.
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    Hi Sandy; thank you for the compliments! Diana is actually my God-Daughter, but she does resemble Lauri a bit. People often mentioned that when Diana was a baby and Lauri would babysit her . She exemplifies the term "God-Daughter" because she has been a God-Send to us.
    How are you? I hope your trip is a wonderful one..make sure to take care of yourself. {{{hugs}}}
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    Oh that sounds like fun! I think 152 is doable! That will be a great trip just make sure to give yourself time to rest in there!
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    Hey Sandy! Thank you for all of your help on this! You have been so kind. Maybe a little better but it is still there. It doesn't hurt or anything it just feels funny. How are you doing today?
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    Oh Sandy that was very kind of you! I have stopped the anxiety meds except for the ammitriptyline for sleep and fibro (also is for anxiety). It is interesting that the symptom that first got me to go to the doctor was difficulty getting a good breath and thinking I was having a heart attack. I had been sick for a couple of years but I refused to go to docs. I ended up in the ER with a BP was so high they thought I was going to have a stroke and sent me straight to the cardiologist. My heart itself is OK but I have a very high Factor VIII and Factor iX which means we are watching for clots.

    Please send me anything you find. I really appreciate it!
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    Hi Sandy,
    afraid I overdid yesterday and paid for it today. Exhausted.

    Also have a neuro problem not related at all to Lupus. Can't take any headache meds because of the methotrexate. I don't want to bore you with the details. Let's just say that I have a physical mess in my brain and it causes headaches. Thus one isn't normal so I'm calling the neuro in the morning. It's only a 4 so no need for the ER.

    Thanks for checking on me. M day went so well that I overdid. Oh well, now I know.

    You ok? I've been rambling on and not asking about you?

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About SandyR

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About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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