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    Im so shocked.I thought you had the lupus dx as well as its obvious as ive seen your butterfly rash.In a way i feel a little better knowing this is happening to many people so im not alone.Well not happy you know what i mean.Im so nervous to what is going to happen to me now.With the sjogrens dx thats ok,but the M.E dx isnt taken serious at all.So now i have to start from the begining and know how people will treat me.I feel sick with worry.Im sorry you are going through it all too.In the Uk they are sending to work all us sick people,so if they say now i have to work,god help me as i dont sleep at night,so it starts again.Going to work with no sleep hahahaha oh the joys of being sick hey.How do you cope with it?Do you work...sorry my fog is thick hahahaha.Lots of love.xxxxx
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    Hi Sandy had a rough couple of weeks and a nasty letter from the rheumi which triggered a long chat with the gp who tells me i want lupus! I was so upset.After the chat i realise now im wasting my time for any second oppinion and have been told to focus on M.E,srgojens n fibro.What a watse of 2 years fighting.I dont want lupus i want a second oppinion which im never gonna get.I sent my file in of letters of my history and things ive done to try to get better,see if that helps my case....but my gp made it clear,i have to stop talking about lupus.I told him,well the rheumi put me on this track not me.Hope you are keeping well.think of you often.Ive not been online in a couple of weeks,so frustrating all this.Now im at square one....big yawn!!Lots of love.xxxxx
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    Dear sandy enjoy wedding hope your feet don,t ache to much wish i could crochet or knit but am not very good at these things luckly both my daughters did not inherit it from me its funny but there father taught them to do it he is very handy at these things look after yourself my friend luv kim l
  4. I just snowblowed my driveway. I put a yardstick into it, and it was 26 inches. I think mother nature deserves a class action lawsuit at this point. Now, I'm in, and warming up.
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    Actually now I'm down in Atlanta Georgia. I'm all over the country.
  6. Thank you for thinking of me, Sandy..I will be moving on April 28. I will close the deal on a new home I am purchasing tomorrow. I did what I can for Bola...let the cards fall where they may. I am too tired, too frayed and frazzled. I am calling the claim adjuster Monday and tell them they win. I have no fight in me for them for the replacement value of my SUV....

    Sigh...Grief, is actual a state of fear.....I hope it ends soon. Baby steps are so huge, so I am just crawling about....OX
  7. Hi Sandy,

    It's snowing like hell up here. It started about 7am and is still coming down. Looks like about a foot at this point. Blah! We almost never get snow in April. I intend to write mother nature a strongly worded letter about this situation...
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    LOL Sadly I didn't think of Texas either! I was an escrow officer in a previous life. Tgal happened on another sight having to do with the mortgage collapse. T for Title. I no longer do that but the name just stuck! I think I will change it from now on and say it means "Texas".

    I know the cold is hard but the heat kills me. We are already having to use the AC . I have decided I would like to live in Forks (Where the twilight series is filmed) where there is seldom any sun. I heard about your snow. Strange to think that I used to spend the summer weekends at the lake enjoying the sun and water but now I wait for cloudy colder days!

    How are you feeling today?
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    hi sandy things not so good pulled mikaela out of school am going to homeschool further bullying mikaela goes to the same school that was on television lately where that kid picked up the other kid and threw after being bullied, sarah is taking seizures due to stress, josh still in rehab and i am flaring at the moment but enough about me how are you doing hope you are feeling alright my friend and wish you a wonderful day hugs kim l
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    Thanks, hope you're doi ng well.

    Where you and Lauren talking about Jackson (township) new jersey? I used to live near there I. Brick
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About SandyR

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About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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