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  • Saysusie's Avatar
    05-22-2017, 06:18 AM
    Thank you as well Shanna, may you continue to find comfort and support. Much love and I wish you peace and blessings. Saysusie
    2 replies | 70 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:45 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    2 replies | 70 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:22 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    0 replies | 49 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 447 view(s)
  • lucky7's Avatar
    05-16-2017, 02:00 PM
    lucky7 replied to a thread I'm a grandmom!! in Lauri's Lounge
    AWWWWWWWW!!! I MISS YOU!! It's been tooooooo long!!! CONGRATULATIONS on becoming a grandmama!!! HOW AWESOME!!! I think of you a lot even though I...
    4 replies | 447 view(s)
  • lucky7's Avatar
    05-16-2017, 01:38 PM
    lucky7 posted a visitor message on noelg's profile
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 480 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 480 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 197 view(s)
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275 Visitor Messages

  1. View Conversation
    Yeah, I've been missing for a while. I am now a married woman. I spent a week in Florida for the honeymoon, and then a week with my husband's family and now a week with my family. This is the first time I've been online in over two weeks. It has definitely been a tiring two weeks, but it's been so worth it. I've been taking it as easy as possible, and Thank God my health is still gradually improving. I feel like a whale from all the weight I've gained from the 20 mg of Prednisone a day I'm taking, but I get to start decreasing it soon. That's very exciting. I hope all is well with you! and that your health is improving as well.
  2. Great, thank you. I was worried that this person somehow got past the block/ban and was sending more PM's, but 2:00 am is before I activated the ban/block, so we're good to go! Thank you!
  3. Hi Sandy, did you happen to look at the timestamp? I'm wondering what time the PM was sent to you. Thanks
  4. Oh..D'oh. I must be tired..I am. I read it as if you are still living here and I even read it a few times and went huh?.... I better go to bed. Night Sandy...hugs.
  5. Living where, where is here? LOL
  6. View Conversation
    Ah such lovely photos,you are very pretty and oh the cruise looked fab and your friends too.Hope you enjoyed halloween looked like you were happy.x
  7. bummed today. trying to get my spirits up to at least clean this pig stye of an apartment. Being bummed really seems to drain my energy tho it's only 2:10pm here
  8. View Conversation
    Im ok,still the same but trying to keep upbeat.How are you today? Oh its 6.45pm here.xx
  9. View Conversation
    OUCH you must be in total head pain with that.Hope the meds kick in soon for you.Good on ya for cleaning your desk lol.Hope you have a good day,just take it slow.xxxxxxxxx
  10. View Conversation
    Ah thank you.Its getting better n since i had my 2 teeth pulled out on the oter side,its sitting better,but still not in the right place.Throbs allot,but no crackin n crunching fingers crossed.Funny thing ,yesterday i had phantom toothache lol...yet the teeth r gone lol.Gums healing i suppose.How are you today> Feeling any better?xxxx
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About SandyR

Basic Information

About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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View SandyR's Blog

Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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