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    Isn't it wild how someimtes you can feel it invading more and more? ugh. I'm getting more sensitive to that and it helps. I slow down and rest more and be extra careful not to not throw fuel on the fire. weekend was okay here. I slept most of saturday and on into sunday morning but it helped. sunday was nice. hubby and i played with our new puppy and relaxed around the house. the autumn weather on sunday was like a mini vacation out on the porch...oh it's nice still too... love this change in weather. how about you?
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    Sorry I'm so slow replying Sandy. been dealing with the weird migraine it's going into that nasty circle again. i hope not but it's acting like it wants to. how was the ecco? Any news? I'm not able to keep up on the board well lately but am going to try today.
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    Yams...mmm. lol. Was it good? I'm just now getting online...lots has been going on, but wanted to get caught up with visitor messages first. So glad to see a message from you Sandy. (((((hugs)))) how are you?
  4. hi sandy,

    things are not going well. i had another bout of trigeminal neuralgia. went to the hospital and was given demerol. like before, it didn't do much for the pain. the pressure and burning sensation in my jaw and face has been almost unbearable. one side of my face is numb, and i can't feel my right hand.

    i'm typing one fingered with my left. been getting stinging/shocking pain in my rt. foot. I can't believe how weak i feel. I have an appt. tomorrow for some more tests. got my sis here helping me with things.

    can't eat anything solid because chewing hurts like hell. i am tired. I hope all is well with you. how are you feeling? flares leaving you alone? anyway, i'm going to try to sleep. have a good night.


    ps glad you were able to access the site and login.
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    Oh thanks allot for that.Im sorry you are aching,maybe a soak in a bubble bath hey may help a little.Im going to go now and pop a pill.So you have a good night and hope you feel a touch better tmrw.Love Amanda.xxxxx
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    Angel Oliver Oh such fab news How are you? Me not used the sleeping pills yet may try one in a min,bit worried as i sleep walk you see,have you ever tried em,Ambien?x (lol i wrote it on my own page DOH lol.x

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    How are you Sandy.Fab photos of the dogs.Did Bear get adopted yet? I so hope so he deserves a home of his own.Hope you had a good day.Love Amanda.xxxx
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    Hey there sweetie! I'm hanging in there. I'm on the lookout for a post about your appt. with the rheumy. How are you?
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    Get some rest, take care of yourself. I am planning to do a lot of resting this weekend myself!
  10. View Conversation
    The fires have only affected us in that we've gotten ash on our cars. Some of our friends in the Pasadena, LA area were greatly affected and almost had to be evacuated.
    Hope all is well with you.....
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About SandyR

Basic Information

About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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View SandyR's Blog

Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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