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    hi sandy just checking in have not heard from you for while hope you are okay my friend many hugs kiml
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    Hi Sandy! I'm sorry I'm so slow keeping up. I'm doing good. How are you my sweet friend?
  3. I weeded a few more out..they should have a select all button....this time I did 20 I think..OX..Happy Tuesday...
  4. I made room...
  5. Hey there, how's it going Sandy? Same old stuff with me-good days, bad days. Kinda cold and rainy summer up here. Haven't been out on the boat yet this year, and haven't been racing-BLAH!

    Hope all is well with you today,

    Rob
  6. Ouch..Head hugs....sounds like your body is taking a beating from all corners. It is hard babysitting our bodies all the time. We have to walk around with a tarp over us. My mind and body felt calm, the first time since Bola passed... yesterday and the day before. My mind feels some peace today, but what happened to my body... maybe because I didn't babysit mine. I ate a handful of red vines and some carrot cake yesterday...sugar.. .inflammation, probably. So, toting the carcass today. I think I am done with anything sweet, carbs. For now. lol. Ya, right. Have you tried running your cankles under cold water then warm in the tub? Might stimulate and move the inflammation out... I hope today, tomorrow is loads better...OX
  7. Hope everything is alright, Sandy.... Is it? OX
  8. Begonias, I love those...but I could never keep them alive...or the squirrels would dig up the bulbs and gnaw on them...I'd see teeth marks they left in the pull up bulbs. OX
  9. Thank you, Sandy for writing to me...I went.. I don't know if it is for me...but they asked to give it three meetings before anyone decides...It was informative..helpful and everyone was so kind. A few women reached out towards me. I called one this afternoon and said thank you for giving me your number, reaching out towards me...it was nice to speak so someone who feels like me..... I hope we can become friends beside having a spouse pass away....and have other things to talk about..to help us move forward, to laugh and smile without stopping it.OX
  10. Thank you, Sandy...I just have to learn how to tweak my thoughts, change my perception and reception. I need to change the conversation that I have with myself in my head. It is hard being alone 24/7...without human touch or to engage in a conversation in person. There is a support group meeting Tuesday, I hope I can force myself to go..it is like the life line is there, but I just can't extend my arm out because I do not know who is towing the line.
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About SandyR

Basic Information

About SandyR
Biography:
Psoriasis, Diabetes (Type 2), Sarcoidosis
Location:
Long Island, NY
Interests:
dancing, dog walking, cross stiching, cooking
Occupation:
office work

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As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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01-21-2012 04:06 PM
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06-06-2009
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View SandyR's Blog

Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.
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unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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