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  1. Hi Sandy,

    How's everything going in your world today? It's raining and cold here, which is OK as I'm in the middle of another flare, and stuck indoors anyway.

    Rob
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    is there anyway to live chat on here?
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    hi, we have things in common...I am sweets...how are you today?
  4. View Conversation
    Wow you are going through it Sandy but i hope the doctors can now treat you for this new dx and help you.Well ive escaped to Johns for some peace from the noisey neighbours as i was a mess inside n out.She told him i need a break away and i'll let you know what happens next if anything at all.Thinking of you Sandy.Keep resting,it does help.How are your neighbours lately?xxxxx
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    Thanks. I took it in Vegas at the hotel we stayed at. It's the display hanging in the lobby. They have a different theme every time.
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    Grew up here, so I have seen so many changes. How do you like Suffolk County? I have friends and family all over long island, hence why I want to move back. I am unable to do either at the moment, walking is a real problem for me lately. Keep me updated if you could tho, would love to join you in the future.
  7. View Conversation
    dear sandy sorry to hear you are having problems with lesions hope you are feeling better soon my friend. my moving is stalled again we though we would move in this weekend but they are still getting house prepared hopefully next week should get keys on monday hopefully. was in emergency department myself this week have protein in urine and was experiencing heavy bleeding i have now been told have fibroids they thought i was going to have to have blood transfusion but have decided to wait and see if i get worse am very weak right now will neeed operation to remove them and maybe hysterectomy just told me if i get worse come back to emergency. thankyou my friend sorry i have not been talking much this week thinking of you always love and hugs kim l
  8. View Conversation
    Hi Sandy i need a torch to help me see through this darkness lmao.Im still hidin in mafia. How are you and thanks for the email on the walk well done you for oining in and helping many.How are you doing? I hope you are having much better days.I always think of you and everyone.I feel so igorant,but i dont want to dump my thoughhts on anyone so i pop in every now n again.Gonna lie down in a min.Thinking of you Sandy.Love n hugs.xxxxxx Thanks for caring about me.xx
  9. hi Sandy,

    I read your post aboutyoor Aunt Beth. I remember you telling me about her. Thank you for doing the ms walk. I'm sorry I haven't sadi hello in awhile. I can type an talk ok one minute, and then I get dumb thumbs. Proper spelling is beyond me right now. I hope you are doing allright.

    rob
  10. View Conversation
    no sandy still working on getting stephens machine and packing slow due to poor health spending easter with my motherinlaw she had heart attack 2 weeks ago and is not well so i have been trying to help her the best i can. talk to you soon hugs kim l
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About SandyR

Basic Information

About SandyR
Biography:
Psoriasis, Diabetes (Type 2), Sarcoidosis
Location:
Long Island, NY
Interests:
dancing, dog walking, cross stiching, cooking
Occupation:
office work

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As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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01-21-2012 04:06 PM
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06-06-2009
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View SandyR's Blog

Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.
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unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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