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    Hi Sandy, I just got you message today. Thank you so much for your words of encouragement. I am thankful that you are praying for me and my family. Yes, we are moved in but there is no ramp for my husband to get out in his power wheelchair. I do believe that GOD is gonna open a door for us to move in a wheelchair accessible and handicap accessible apartment very soon. How are you? You can hit me up on facebook sometimes because the only time I come on here is when I am playing arcade games. I love the mahjonng game. Ok. Thanks again for your words of encouragement. May GOD bless you richly.

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    Hi Sandy;
    Thanx for asking about me I am taking it easy this summer and plan to do a lot of relaxing. I am hoping that I can avoid a flare-filled summer like I had last year. That was no fun at all!!
    I am trying to teach my 2yr old God daughter to swim. It is going a bit slow as she hates to get water on her face (LOL). But, it is just a joy to be with her.
    I hope that you are doing well and are enjoying your summer so far. Sending you warm thoughts and lots of well wishes!
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    Hi Sandy!!! OMG I'm on cloud nine!! my ex husband finally gave up his rights to my oldest child and my husband Devan has officially adopted him... now he can REALLY say that's my boy. It's been so hectic lately I don't know if I'm coming or going. No one ever said that being a mom was going to be easy and slow paced... If it's not Scouts it's Tball it's biking or hiking (which I do with the boys and that REALLY kills me when we're done) I've been feeling OK physically. Lately it feels like someone has shoved there fist down my throat and I can barely swallow. When I eat or drink anything I have to lift my head up like a bird or the pain so bad that I have to have it come back up. Oh well. Just another trail that was given to me that I have to face with a smile How are you doin'? What have you been up to lately? What are you doin' for the 4th? I'm going to UT to see family and celebrate the wonderful adoption of my son. I hope to speak to you again.
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    Hi Sandy were doing good the wife just went to her rheumy and he said everything ok shes off her blood pressure meds and she gets a little more use from her right arm after being paralyzed by the stroke ,how have you been hope all is well with you
  5. Hi Sandy,

    How's everything with you today? I'm getting ready for a weekend on the water. Hopefully my new one million spf bulletproof waterproof sunblock works. Hey, have you noticed that the forum is processing/running slowly?

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    WOW!!!! What a busy weekend you had lol.I so long to do all that again...sounds amazing.Park,dinner,bikes, busy but so good for the soul to have so much to do.I sat hding at an old ladies back garden hiding from my neighbours who intimidate me....thats what i did lol.See the difference lol.Makes me smile when i read what you did.Hope you are feeling a little better and yes it will be the sun....on top of exhaustion lmao...funny.How are your neighbours now? Hope they are much sure you told me they were noisey.You take care...catch up with you soon.Lots of love.xxxxxxxxP.s Nice post to Faith...comforting.xxxx
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    Hi Sandy how are you? Let me know.Hope yoyu had a good weekend.Love n hugs.xxxxx
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    Oh wow such exciting times ahead for your sister and you congrats to her.Hope she enjoys the shower,so exciting hey.So glad you have been ok,but sorry you got burnt.Its actually been sunny n hot here,this weekend is going to be in the 80's so i;ll be under the brolly if my neighbours stay away lol.Missed you too my friend.Thing is on fb cause im hooked n hide in mafia i miss allot of posts and just see mafia stuff.Thanks for replying to me so fast as well Sandy.Yes my Jess,Ol n Soosie are all doing well thanks.Daisy will never be forgotten though....but time flies by doesnt it.Let me know how your weekend goes.So nice to see you.Lots of love n hugs.xxxxxxx
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    Sorry i was hiding again lol.Sorry about your new dx but hope you are coping ok.Sorry on fb i hide in mafia,i just dont think but just attack but im thinking at the same time if you know what i mean.Ive not really chatted to many in a long time only John properly.So gonna start trying to come here more often.Let me know what you are up too,how you are feeling,i hope a little better.Sorry ive been a rubbish friend...dont mean to be but you know when life just carnt get any worse then it does lol...well thats how its been.But im still fighting thats the main thing.Hope you are too my friend.Lots of love nhugs.xxxxxxx
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    Thank you =)
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About SandyR

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About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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