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    Hey I'm doing alright. The last few days have been hard. I went into the sun for just over an hour about a week ago and have been paying for it ever since. Just been working a lot and enjoying the single life again.
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    Thanks for the friend invite Sandy . You asked me how I was. I am happy because my rash on my neck has gone probably because I started taking plaqenal, however, I am feeling sicker. I go back to work on Monday after having two week school holidays. I have been planning lessons, reading heaps of kids novels for school, Lupus books, WHL forum. and resting. I can only last 4hours when I go out then I need to have a sleep, so I am a bit worried about how I am going to cope teaching all day. I suppose this flare will eventually go away. I still haven't had my kidneys sorted out yet, it take so long to get in to see the rhuematologist. Hopefully they will not get any worse by then. Anyway, enough of the whinging by me, tell me a bit about yourself. I have read some of your posts, and I am tryng to get a profile of some people, so I can really feell like I belong to this Luppie family.
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    hi sandy,

    i miss you too. I miss all of the oldies here at whl...i am going to make the effort to get back involved. Hope to do a better job of keeping in touch with my dear friends here. How are you feeling? what have you been doing this summer.

    I have been feeling ok since i got my gallbladder out,,,,,got past that last episode of crazy medical issues. I guess i am in the coasting mode. have not had a really bad flare, but have short bouts with being attacked.

    Yes, my daughter had her third baby in June, and he is absolutely precious. This is my daughter that just had breast cancer, so Jonathan is a true gift.

    Write back, and i promise to be here more often.
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    Oh i hope it gets cooler for you soon.So glad you have been walking the dogs still and trying to enjoy yourself.Let me know how you get on when you get the umph to tell the doc about the rashes.Hope they go away or you get help soon.But i knnow what you mean,sometimes it feels like too much hassle to make the be told its nothing important when to us it is!!I have a weird rash either side of neck still,chest,top of arms and backs of legs...oh n both cheeks,but its like a brown/pink unraised i need a wash.I did scrub my face just in case once but nope its staying lol. Hope works being kind to you.How is the old dog that finally got a home? Do you ever hear still? Hope he is ok.You take care.Love n hugs.xxxxx
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    When I was a kid we had no AC also. But now can't live with out it. Strange how we raynaud's get in the summer. My rheumy has never diagnosed me with raynaud's. When I tell him about how cold my hand and feet get, all he says is try to keep them warm. Hope you can stay cool and enjoy your aunt AC. Have a nice weekend.
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    Hi Sandy, how you doing? Wow i see you also been getting mega heat over the pond.Its cooled here for now,so in the 60's now so bit chilly.Let me know what you been up to.Lots of love.xxxx
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    We had a nice 4th cooler a couple days. But hot again now. We have our AC on but still hot. It's working so hard to cool. You try and stay cool and before long it's will be to cold lol.
  8. Hi Sandy-

    It's been a busy summer. We had a snafu with our DSL so I've been AWOL from WHL for a while and I've been going stir crazy.

    I hope you're feeling well and had an enjoyable visit with your mom (if I remember right you were going to Florida to see her in February ????).
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    Sandy; That is a good idea about the snorkel. I will give it a try when I have her next week. I am glad to hear that you are doing well, so far. We are so grateful for any moments of relief that we get. I truly hope that yours lasts for a long time and that it just keeps getting better.
    I hope you enjoy the holiday weekend!!

    Best Wishes
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    Having good days and bad days. It's been so hot here. But today it's cooled of and nice. How's you summer?
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About SandyR

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About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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