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  • Saysusie's Avatar
    05-22-2017, 06:18 AM
    Thank you as well Shanna, may you continue to find comfort and support. Much love and I wish you peace and blessings. Saysusie
    2 replies | 58 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:45 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    2 replies | 58 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:22 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    0 replies | 41 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 435 view(s)
  • lucky7's Avatar
    05-16-2017, 02:00 PM
    lucky7 replied to a thread I'm a grandmom!! in Lauri's Lounge
    AWWWWWWWW!!! I MISS YOU!! It's been tooooooo long!!! CONGRATULATIONS on becoming a grandmama!!! HOW AWESOME!!! I think of you a lot even though I...
    4 replies | 435 view(s)
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    05-16-2017, 01:38 PM
    lucky7 posted a visitor message on noelg's profile
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 464 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 464 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 188 view(s)
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275 Visitor Messages

  1. View Conversation
    Her colonoscopy went well. He thinks her bleeding came from a area in her colon that was inflamed. But still waiting for results to some back. But dr says he thinks it will fine. But the shingles are driving are crazy. Now we can Put the colon test behind her and deal with her other problems.
  2. View Conversation
    Oh im sorry to hear that and hope now you feel a little better.Always the way like me.Well happy new year and hope this year is much better for you.Or i win that lotto to help you..oh i so wanna win it lolLots of love.xxxxx
  3. View Conversation
    Yes staying in,not much i can do at the mo as i got pleurisy so resting with some wine lol.Hope you enjoy yourself for me.Happy 2011.Lots of love.xxxxx
  4. View Conversation
    Hi Sandy when im next on fb i'll go look at your new photos.So glad you had a lovely time with your little neice.Must have been so lovely for you,so exciting.I so hope 2011 is a happy one for you all and it brings lots of good things.You take care and thanks for being my friend.Lots of love nhugs.xxxxx
  5. View Conversation
    Hi Sandy hope you have had a fab Christmas and lets hope 2011 is a fantastic one/Lots of love my friendxxxxx
  6. View Conversation
    merry christmas sandy and happy holidays hugs kim l
  7. Hello Sandy,

    How are you? I'm doing much better. Still having my usual lupus flare stuff going on, and some numbness like I usually have from MS, but that horrible TGN pain is gone, hopefully for good. I can deal with the rest! I was reading about what's happening to Porchy, and I am sorry to hear that. She's got to be one of the funniest, most upbeat people I've met here. Please tell her I said hi, and that she is in my thoughts. Getting any storm down there? we had 70mph winds last night and a ton of rain. All the snow is gone, and it's actually warm out. Strange stuff. Anyway, I hope you are having a good day.

  8. View Conversation
    I woke up today all puffed up =( I thought I might be getting another ulcer and I definately have one now. First snow came today =( and with it came a flare up. My hands are so unmanagable during the winter.
  9. View Conversation
    I agree. School is going well. Trying not to stress too much. I've been so tired I've been falling asleep in classes though and I havent done that in years. I feel like Im never rested anymore.
  10. View Conversation
    Thank goodness it is clearing up. Still kind of itchy but it doesnt look like that anymore.
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About SandyR

Basic Information

About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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01-21-2012 04:06 PM
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View SandyR's Blog

Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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