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  • Saysusie's Avatar
    05-22-2017, 06:18 AM
    Thank you as well Shanna, may you continue to find comfort and support. Much love and I wish you peace and blessings. Saysusie
    2 replies | 70 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:45 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    2 replies | 70 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:22 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    0 replies | 49 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 447 view(s)
  • lucky7's Avatar
    05-16-2017, 02:00 PM
    lucky7 replied to a thread I'm a grandmom!! in Lauri's Lounge
    AWWWWWWWW!!! I MISS YOU!! It's been tooooooo long!!! CONGRATULATIONS on becoming a grandmama!!! HOW AWESOME!!! I think of you a lot even though I...
    4 replies | 447 view(s)
  • lucky7's Avatar
    05-16-2017, 01:38 PM
    lucky7 posted a visitor message on noelg's profile
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 480 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 480 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 197 view(s)
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275 Visitor Messages

  1. View Conversation
    Hi Sandy popping by to say ello and hope you are feeling human and painfree.Lots of love.xxxx
  2. View Conversation
    Sorry i missed you was in a mock war lol. You rest and have fun this weekend you deserve it.Lots of love.xxxx
  3. View Conversation
    Ah so glad she is going great! So cute.You have a good rest when you get home.Ive just come off fb so i'll go look when i go on tmrw.Hey go have a few giggles on my wall the 3 clips of family guy.They are so funny.My kind of humour lol.I actually act the same after a soda will understand as you watch it.
    Mam saw the doctor and is resting got some new pills,she has minieres and high bp,just happy it wasnt her brain again,as she says its only little lol.We have to call doctor on Monday.
    Please let me win this weekends of love.xxxxx
  4. View Conversation
    I didnt get much but hopefully tonight is the night lol.How you doing and your little niece? Jope today is being good to you.Lots of love.xxxx
  5. Hey Sandy, how are you doing tonight?
  6. View Conversation
    Woohoo so glad to hear you had a good one and enjoy the rest tmrw too.Lots of love.xxxx
  7. View Conversation
    Stopping by with a big open arm squeeeeeeeeeeeeeeeeeeze for you .Hope you are having a nice day Sandy.Lots of love.xxxxx
  8. View Conversation
    Hope you are feeling a little better Sandy and are resting.I had a quiet christmas n new year but was nice.I lost that lotto again too lol.Lots of love.xxxx
  9. View Conversation
    That was so sweet...thank you so much. I hope that you have a wonderful and blessed day too
  10. Hi Sandy,

    Been having some terrible brainfog. Was up all nite last nite with sweats and fever of 101. Saw my GP this morn, and he thinks it's just the flu. I have a sore throat too, so I think he's right. Just feeling like my head is in the clouds. Yuk. How are you doing down there in NY?
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About SandyR

Basic Information

About SandyR
Psoriasis, Diabetes (Type 2), Sarcoidosis
Long Island, NY
dancing, dog walking, cross stiching, cooking
office work


As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.


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01-21-2012 04:06 PM
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View SandyR's Blog

Recent Entries

New Photo Album

by SandyR on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.

unusual worry

by SandyR on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually

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I have a blog?!?!

by SandyR on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired

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