Yesterday, 08:23 AM
YAAAAAAA STEVE!!!! I truly, truly, hope that your Lupus remains stable enough that you do not have to go back to MTX. Are you taking any other...
1 replies | 17 view(s)
Yesterday, 08:20 AM
Thank you so much Steve! Actually, I had never heard that Plaquenil could trigger Fibromyalgia. Now that you've clarified and brought this to our...
1 replies | 16 view(s)
10-14-2016, 04:01 PM
Thank you so much for the information. I am otherwise booked or I would have loved to attend. Please continue to post events in the L.A./San...
1 replies | 103 view(s)
10-14-2016, 03:59 PM
If he is in the U.S... he cannot donate them, and sending them by mail is against the law also if they are not coming from a pharmacy. :-(
7 replies | 408 view(s)
10-14-2016, 03:57 PM
Prednisone and Plaquenil are usually the first line of defense for many Lupus patients. However, it usually takes a little experimentation with the...
2 replies | 174 view(s)
10-14-2016, 03:53 PM
Hello and welcome to our family. As Steve mentioned, hair loss is a common symptom of Lupus as well as other auto-immune disorders. However, we are...
2 replies | 115 view(s)
10-14-2016, 03:51 PM
Since Lupus affects each of us differently, it is difficult to say what is or is not a good place to live. It truly depends upon how...
2 replies | 104 view(s)
Showing Friends 1 to 10 of 44
View SandyR's Blog
on 06-27-2009 at 11:05 PM
I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.
on 06-24-2009 at 09:11 PM
this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually
on 06-17-2009 at 07:13 PM
Wow! I just realized that I have a blog on here. Cool. What to say, what to say? Tomorrow I am going to PA to see my niece graduate high school. Makes me feel very old. I am going to swing through NJ on the way home to see dad, which is really good since it's Father's Day and also my youngest brother's bday. Work was good today. Got alot accomplished. Cleaned up a ton of files. Got the supply order put away. Almost done with a report for one of my bosses. Overall, pretty good. Was tired