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    Thanks sweetie! i am ok! i hope you are well! Have a wonderful day! Hugs
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    OMG! I just read that you work at a zoo! That is so cool and sounds like heaps of fun! I barely ever get to go to the zoo!

    I also saw your cheer photos you look so cute and as though you are having heaps of fun! I must learn how to use the album feature, but i barely have any photos of myself anyway!
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    I have been so lucky not to get the puffy cheeks. Apparently my body has reacted really well to the prednisone so that is a plus! Im sure your little puffy cheeks look cute and they will eventually go away as the prednisone gets cut down.

    Thanks for the dietary advice, it has been one area i have not yet had a chance to discuss with my doctors but i have an appointment in a week so i can do that then. I will never give up chocolate!

    I must say i do love living in Australia! As soon as i leave school i will definatly travel. I would love to see france, italy and ireland! But thats still a while away and i never seem to stick to my plans.

    So what are you hobbies, future aspirations ect? I dont know about you but it seems that lupus has been on my mind like 24/7. I think that it is about time i start taking my mind off it, it seems to be getting the better of me.

    Well im off to raid the kitchen once again!

    xx
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    i wish i was that young, my daughter is 17 she graduates in june. is it harder being younger knowing you will be sick the rest of your life. i glad i didn't find out until i was 37 i have a hard time getting up just waiting to see what kind of day its going to be. but if your like me i went good couple of years at at time feeling great. it just took the right doc. at right time to figure out what was causing everything.
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    Well life could be alot better if weren't for being sick. but all in all not too bad. sat went to rest. on the water and sat outside and ate and looked at the boats it was very relaxing and skin was ok put on sunblock. the sun doesn't bother my skin like most lupus patients. are you in college or high school pict. make you look young?
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    A couple years ago, about 20, I had an episode that my left eye, midway down, went completely black and I couldn't see anything. My rheumatologist says that might have been a clot. This year I finally went in to see one because the hives came back again. He diagnosed me, finally, with lupus and the lupus antibody. The antibody puts me at extremely high risk for strokes, heart attacks, and miscarriages. I just started dating a wonderful man in January and since then, I've had my gallbladder out, my wisdom teeth out, and those two diagnoses. My health has really gone down hill. I'm so exhausted all the time and I hurt a lot. Let alone those stupid hives! I have major random breakouts that sometimes swell my airway. It's really scary. The doc just recently put me on plaquenil, two weeks ago. I'm waiting to see results from that.
    Anyway, what's your story?
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    I started having symptoms in 7th grade and had no idea what it was. My parents wrote it off as I was just faking it or getting into something I shouldn't have been in. I started with hives all over, from covering my feet and hands to swelling my eyes shut. They hurt so bad. Then the symptoms went away. They came back a few years later and it was very frustrating cuz I was like 16 or 17 and of course so selfconscious at that age. Then the doc found my positive ANA at 640 and advised me to go to a rheumatologist but I refused to because I didn't have insurance. I moved out of my parents house the day I turned 18, I had already graduated by then. The symptoms, again, went away.
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    Hi there CUTIE!!!!!! Hope you are doing ok! I know you're busy with school and i hope you are taking care of yourself. Dont overexert yourself! Get your rest sweetieXXXXXXXXXXXX
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    Hope your having a good day. I have flu or something.
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    Hope you having a good day. I have flu or sommthing
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About ashleybaby715

Basic Information

Date of Birth
July 15
About ashleybaby715
Biography:
I'm Ashley! I'm 21 years old. I am currently a senior at the University of Pittsburgh striving for a degree in Psychology with a minor in Theater. I'm hoping to become a Child Life Specialist post graduation. I was diagnosed with SLE on January 12th, 2009. I'm living 5 years strong with it. I may have Lupus, but it certainly doesn't have me!
Location:
I live in Pittsburgh, PA!
Interests:
I love just being happy. I love to hang out with my friends and I absolutely love musical theater.
Occupation:
I work for Visitor Services at the Pittsburgh Zoo and PPG Aquarium.

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I'm Not Crazy, I'm Just A Little Lupie!

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View ashleybaby715's Blog

Recent Entries

July 14th, 2009

by ashleybaby715 on 07-14-2009 at 05:11 PM
WOW so i haven't done a blog in forever!!!!!
i've been soo busy working and living up my summer!! ahahah
its been amazing so far!!!
and im soo soo excited because TOMORROW IS MY BIRTHDAYYY!!! yayyyyyy!!!!!!!!!!!!!!!!!!
so thats gonna be fun!
i can't waitt ! haha
and then on the 25th, is the jonas brothers concert! yayyyyyyyyyy!!!!
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June 1st, 2009

by ashleybaby715 on 06-01-2009 at 04:59 AM
Heyy Everyone! Happy JUNE! i can't believe its alreadyyy this month! time is going by soo fast! ughh! haha

only two more weeks of school, and i am done! yayy! !
but now the biggest things of the year are coming up.
i present my grad project, which is soo big because it determines if i'll graduate next year or not, [[ well that and my grades of course...haha]]
and then next week, i have finals. blahhh
the thing i dread the most. but then its summer vacation!!

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May 19, 2009

by ashleybaby715 on 05-19-2009 at 04:35 AM
Heyy Everyone! so i'm pretty excited today. i'm going to kennywood with my physics class for physics day! its alot of fun there, especially when you go with your friends! but mann my morning did not start off good. i brought a bottle of water with me into school because my mom told me to, so i dont get dehydrated at kennywood cuz its supposed to be pretty warm today. so i brought it in, and usually they don't say anything to me, but today they took it from me and THREW IT AWAY! because teq. we're

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May 17th, 2009

by ashleybaby715 on 05-17-2009 at 03:09 PM
Heyy Everyone!
i hope you all have been doing ok! i've been pretty good, except for this stupid sore throat that i have! i've had it since yesterday and its bothering me sooo much! my voice sounds soo scary! haha
it better go away, because i have a pretty busy week! between trying to finish up my graduation project, going on school trips, and everything else, i dont have time to be sick! haha

im soo excited because on thursday me and my mom are going to this meeting

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May 10th, 2009

by ashleybaby715 on 05-10-2009 at 05:42 PM
Heyy Everyone!
i hope all you moms on here had a GREAT mothers day!
wow i had a crazy day at work! i was surprised with Reception Desk training. it was definetly a BIG change from what i usually do! it was soo confusing and pretty overwhelming, but it was cool. i was incharge of the zoo kinda! but i had help of course.
i kept having lupus issues tho! like relaying numbers and such, i kept mixing them up!! but it was ok. they understood. hahah
i feel really priveledged

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