• Saysusie's Avatar
    05-22-2017, 06:18 AM
    Thank you as well Shanna, may you continue to find comfort and support. Much love and I wish you peace and blessings. Saysusie
    2 replies | 72 view(s)
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    05-18-2017, 08:45 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    2 replies | 72 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:22 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    0 replies | 51 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 447 view(s)
  • lucky7's Avatar
    05-16-2017, 02:00 PM
    lucky7 replied to a thread I'm a grandmom!! in Lauri's Lounge
    AWWWWWWWW!!! I MISS YOU!! It's been tooooooo long!!! CONGRATULATIONS on becoming a grandmama!!! HOW AWESOME!!! I think of you a lot even though I...
    4 replies | 447 view(s)
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    05-16-2017, 01:38 PM
    lucky7 posted a visitor message on noelg's profile
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 482 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 482 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 197 view(s)
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286 Visitor Messages

  1. View Conversation
    Ah thanks for the hugs....so nice.Hope you are doing well too.Im easing a touch at last...still swell...but ok thanks.xxxxxxxxxx
    Hey and your lovely boys were on our telly in the UK..Joanas brothers...so cute i thought of you...you still like em...yeh im sure you do.xxxxxxxx
  2. View Conversation
    Hi Ashley!!! Im GLAD you're feeling alot better hun!!! Its a GOOD thing when you can fight off an infection!!!! WOO HOO to you winning this battle, along with SO MANY others in your young life! Hugs to youXXXXXXXXXXXXXX
  3. View Conversation
    HI!!! sorry youre feelinglike you might be getting something!!! AWWWW! I am fighting a sinus infection a long with a flare! im fighting the fight though!!! I hope you are feeling little better hun!!! XXXXXXXXXXXXXXXXX
  4. View Conversation
    Im a bit rough and not been on as much as normal...but i''ll be ok.Hope you are ok and still enjoying yourself.Sending you hugs.xxxxxxxxxxx
  5. View Conversation
    a haircut huh...I hope it wasn't too much. We ladies are attached to our hair! I am sure your even cuter than before and really working that hair cut! Glad you have such a wonderful attitude about it all! How was the powderpuff game and dinner with friends? Did the weather allow you to work or did you have to sit it out? My weekend was okay. My mother's birthday was today so my sister and I took her to brunch and we had a wonderful time...eating and drinking!
  6. View Conversation
    i think i read in the forum somewhere about your project! I hope that all goes well for you. I think it will be a really great way to raise awareness about Lupus.
    I'm going out to my cousins christening tommorow which should be good fun. It seems like i hardly ever get to go out with friends so it will be fun to catch up with my family. Some of them i havent seen since cristmas so they dont even know i have been sick. I honestly think that some of my cousins will think im joking, they tend to not take me seriously.

    Also i just wanted to ask you if your hair fall out alot? I am going to ask my doctor but i dont have an appointement for two weeks and it has been falling out like crazy for the last month. Its really starting to thin out and i thought it might be from the plaquenil..

    xx take care
  7. View Conversation
    Just wanted to pop in and say HI ASHLEY!!!! Hope you are feeling well hun! Have a good weekend!! XXXXXXXXXXXXXXXXX
  8. View Conversation
    Just wanted to stop by and say hello and see what you had planned for the weekend? I am sure you have a weekend full of things to do and people to see being that you are so outgoing! Keep smiling and making other's smile!
  9. View Conversation
    Hi, hope your Friday finds u happy and feeling good. Don't ya just love Fridays? Means there's a Saturday hanging out right around the corner. Enjoy your day! hugs n more hugs Lori
  10. View Conversation
    Haha im glad to hear about your A! we dont have to do maths in senior school so i dropped it! Im terrible at maths so i thought there is no point doing something i hate. I got cut down to 10mg and like you i started at around 40mg. I am feeling better but i have had a few flares lately. I better go because im in class at the moment
    xx take care
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About ashleybaby715

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Date of Birth
July 15
About ashleybaby715
I'm Ashley! I'm 21 years old. I am currently a senior at the University of Pittsburgh striving for a degree in Psychology with a minor in Theater. I'm hoping to become a Child Life Specialist post graduation. I was diagnosed with SLE on January 12th, 2009. I'm living 5 years strong with it. I may have Lupus, but it certainly doesn't have me!
I live in Pittsburgh, PA!
I love just being happy. I love to hang out with my friends and I absolutely love musical theater.
I work for Visitor Services at the Pittsburgh Zoo and PPG Aquarium.


I'm Not Crazy, I'm Just A Little Lupie!


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Recent Entries

July 14th, 2009

by ashleybaby715 on 07-14-2009 at 05:11 PM
WOW so i haven't done a blog in forever!!!!!
i've been soo busy working and living up my summer!! ahahah
its been amazing so far!!!
and im soo soo excited because TOMORROW IS MY BIRTHDAYYY!!! yayyyyyy!!!!!!!!!!!!!!!!!!
so thats gonna be fun!
i can't waitt ! haha
and then on the 25th, is the jonas brothers concert! yayyyyyyyyyy!!!!

June 1st, 2009

by ashleybaby715 on 06-01-2009 at 04:59 AM
Heyy Everyone! Happy JUNE! i can't believe its alreadyyy this month! time is going by soo fast! ughh! haha

only two more weeks of school, and i am done! yayy! !
but now the biggest things of the year are coming up.
i present my grad project, which is soo big because it determines if i'll graduate next year or not, [[ well that and my grades of course...haha]]
and then next week, i have finals. blahhh
the thing i dread the most. but then its summer vacation!!

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May 19, 2009

by ashleybaby715 on 05-19-2009 at 04:35 AM
Heyy Everyone! so i'm pretty excited today. i'm going to kennywood with my physics class for physics day! its alot of fun there, especially when you go with your friends! but mann my morning did not start off good. i brought a bottle of water with me into school because my mom told me to, so i dont get dehydrated at kennywood cuz its supposed to be pretty warm today. so i brought it in, and usually they don't say anything to me, but today they took it from me and THREW IT AWAY! because teq. we're

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May 17th, 2009

by ashleybaby715 on 05-17-2009 at 03:09 PM
Heyy Everyone!
i hope you all have been doing ok! i've been pretty good, except for this stupid sore throat that i have! i've had it since yesterday and its bothering me sooo much! my voice sounds soo scary! haha
it better go away, because i have a pretty busy week! between trying to finish up my graduation project, going on school trips, and everything else, i dont have time to be sick! haha

im soo excited because on thursday me and my mom are going to this meeting

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May 10th, 2009

by ashleybaby715 on 05-10-2009 at 05:42 PM
Heyy Everyone!
i hope all you moms on here had a GREAT mothers day!
wow i had a crazy day at work! i was surprised with Reception Desk training. it was definetly a BIG change from what i usually do! it was soo confusing and pretty overwhelming, but it was cool. i was incharge of the zoo kinda! but i had help of course.
i kept having lupus issues tho! like relaying numbers and such, i kept mixing them up!! but it was ok. they understood. hahah
i feel really priveledged

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