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    i honestly think i would rather deal with the flare than stay on prednisone. it would go away eventually. can't stand the steroids... this whole time i've decided i would've rather been in pain than on them. but that's just me.
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    Oh, well ill have to say, The campground misadvertised their place! Their aircondition was broke!!!!! Oh, goodness and its 91 degrees! uck! You pay up front for entire 5 days! Owell, I will take some pictures to post! HUgs Kathy
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    that would be good my rheumatologist told me to decrease by 1 mg of predinsone consistently every 2 weeks until i'm no longer on it now. so i mapped it out on my calendar and this means that by the middle of october i should be prednisone-free (so long as i don't have any problems with the tapering). i hate prednisone!!!!!!!
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    Yeah i know exactly what you mean about people pinching the puffy cheeks!! It's been
    awhile since I've had puffy cheeks...for some reason I want to say they started me on 90mg of prednisone bu but it could have been more or alittle less it was a long time ago but they wanted to treat my kidney disease aggresively so I was also on Neoral which was awful but I've only taken prednizzle about 2 since then because I hated the side effects so I kind of choose not to take it...I dont know if thats a bad choice or not.
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    Sorry for the out of nowhere message I have read a few of your posts and I just read the message Tasha wrote below me and she is right dont worry about that at all because as I can see from your pictures you're a beautiful girl even if you have alittle puff goin' on.

    I first got sick in 2004 when I was in 8th grade they put me on a HUGE dose of prednisone and boy its amazing how much my physical changed...the pictures from the
    first day of 8th grade and the day of my graduation I look like a completely different person..I'll have to scan them and show you..there is about 2 or 3 years of my life
    since then that have NO pictures because I wouldnt let anyone take any because of how bloated and "tomato faced" as I was and now I feel I shouldve let them be taken

    Just remember that no matter how the pictures look the puff will go away and even if
    you don't feel beautiful on the outside at that moment know that you are 3 times as beautiful on the inside.
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    yay that is incredible!! congrats on no more inflammation

    and i wouldn't worry too much about having puffy cheeks in your senior pics. in a couple years you'll forget you even took senior pics, haha. it's your college graduation photos that stick around for awhile! haha.
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    Abilene Texas, hot hot hot! But I am going to try to stay kewl! and make this vacation fun 4 me, and my hubby, and 4 kids! Oh yeah and the dog! lol Hugs Kathy
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    I am fine. going on vacation for 5 days! Hopefully I can stay cool in process! I will have my laptop. Have great week! hugs Kathy
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    oh man, when i was on 40mg i devoured everything in sight! it was ridiculous! and i never felt satisfied. you're right though, after getting down to 20mg the intense appetite went away and i got back to normal.

    still waiting for those damn puffy cheeks to go away completely though! they've gotten better, but i'm still not completely back to normal.
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    wow, that's exciting that you're almost on summer vacay! i don't get a summer break unfortunately. if i want to finish my master's by next summer i need to keep powering through...!

    i hope your blood levels improve! i recently heard from the rheumatologist that the protein levels in my urine are completely normal again this means i should only have to be on cellcept for another couple months! and i'm now on only 10mg of prednisone, and i'll be lowering by 1mg every 2 weeks until i'm off of it completely! how is your prednisone tapering going?
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About ashleybaby715

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Date of Birth
July 15
About ashleybaby715
Biography:
I'm Ashley! I'm 21 years old. I am currently a senior at the University of Pittsburgh striving for a degree in Psychology with a minor in Theater. I'm hoping to become a Child Life Specialist post graduation. I was diagnosed with SLE on January 12th, 2009. I'm living 5 years strong with it. I may have Lupus, but it certainly doesn't have me!
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I live in Pittsburgh, PA!
Interests:
I love just being happy. I love to hang out with my friends and I absolutely love musical theater.
Occupation:
I work for Visitor Services at the Pittsburgh Zoo and PPG Aquarium.

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I'm Not Crazy, I'm Just A Little Lupie!

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View ashleybaby715's Blog

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July 14th, 2009

by ashleybaby715 on 07-14-2009 at 05:11 PM
WOW so i haven't done a blog in forever!!!!!
i've been soo busy working and living up my summer!! ahahah
its been amazing so far!!!
and im soo soo excited because TOMORROW IS MY BIRTHDAYYY!!! yayyyyyy!!!!!!!!!!!!!!!!!!
so thats gonna be fun!
i can't waitt ! haha
and then on the 25th, is the jonas brothers concert! yayyyyyyyyyy!!!!
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June 1st, 2009

by ashleybaby715 on 06-01-2009 at 04:59 AM
Heyy Everyone! Happy JUNE! i can't believe its alreadyyy this month! time is going by soo fast! ughh! haha

only two more weeks of school, and i am done! yayy! !
but now the biggest things of the year are coming up.
i present my grad project, which is soo big because it determines if i'll graduate next year or not, [[ well that and my grades of course...haha]]
and then next week, i have finals. blahhh
the thing i dread the most. but then its summer vacation!!

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May 19, 2009

by ashleybaby715 on 05-19-2009 at 04:35 AM
Heyy Everyone! so i'm pretty excited today. i'm going to kennywood with my physics class for physics day! its alot of fun there, especially when you go with your friends! but mann my morning did not start off good. i brought a bottle of water with me into school because my mom told me to, so i dont get dehydrated at kennywood cuz its supposed to be pretty warm today. so i brought it in, and usually they don't say anything to me, but today they took it from me and THREW IT AWAY! because teq. we're

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May 17th, 2009

by ashleybaby715 on 05-17-2009 at 03:09 PM
Heyy Everyone!
i hope you all have been doing ok! i've been pretty good, except for this stupid sore throat that i have! i've had it since yesterday and its bothering me sooo much! my voice sounds soo scary! haha
it better go away, because i have a pretty busy week! between trying to finish up my graduation project, going on school trips, and everything else, i dont have time to be sick! haha

im soo excited because on thursday me and my mom are going to this meeting

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May 10th, 2009

by ashleybaby715 on 05-10-2009 at 05:42 PM
Heyy Everyone!
i hope all you moms on here had a GREAT mothers day!
wow i had a crazy day at work! i was surprised with Reception Desk training. it was definetly a BIG change from what i usually do! it was soo confusing and pretty overwhelming, but it was cool. i was incharge of the zoo kinda! but i had help of course.
i kept having lupus issues tho! like relaying numbers and such, i kept mixing them up!! but it was ok. they understood. hahah
i feel really priveledged

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