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15 Visitor Messages

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    i ended up staying there december 30th and newyears eve...but i got to go home at like 6 that night, so i didnt have to ring the new years in a hopsital bed! haha. i talked to soo many doctors and specialists and so much blood was taken. i had an echocardiogram and a CT-scan. they said it was really likely that i had lupus. i went back to the rheumatologist January 12th, and thats when i was officially diagnosed. it was soo much to take in when your only 16, but surprisingly i handled it alot better then my family and friends!! wow that was longg !hahaha
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    so a few days later, i went to see him. he looked at me and said i looked like i was in really bad shape. i couldnt even bend my joints, and it took me like 10 minutes to just walk down the hallway. he ordered more blood work [[14 tubes to be exact!]] he said it could be anything from an infection, to cancer. which was SCARY! he also ordered a chest and abdominal xray. the next morning, we got a call saying i needed to be admitted into childrens hospital asap because there was fluid around my heart and lungs and my liver was really enlarged. this scared me SOOO much!!!
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    this past december, i was NOT myself at all. i was sleeping, all the time. i was always really sore, my joints hurt really bad, i was freezing all the time, never hungry and just miserible, which is totally opposite of me cuz im always in a good mood! i went to the pediatrician and they said that i lost weight, so wanted to do bloodwork. i think she thought i had an eating disorder to be honest...haha but i went and got the bloodwork and the next day they said i was anemic, my protein levels were low and that i had inflammation somehwere im my body. i was refered to a rheumatologist...
  4. View Conversation
    i'm doing really well. its starting to get warm here in pittsburgh, thank goodness!! i can't stand cold weather! i'm actually lucky, the sun doesn't really affect me, but i'm always sure to put sunscreen on anyways. i always have :]
    so whats your ''lupus story'' ?
  5. View Conversation
    hi there. just stopping by to say hello and introduce myself. my name is ashley :] feel free to message me anytime! i love meeting new fellow lupies
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