i ended up staying there december 30th and newyears eve...but i got to go home at like 6 that night, so i didnt have to ring the new years in a hopsital bed! haha. i talked to soo many doctors and specialists and so much blood was taken. i had an echocardiogram and a CT-scan. they said it was really likely that i had lupus. i went back to the rheumatologist January 12th, and thats when i was officially diagnosed. it was soo much to take in when your only 16, but surprisingly i handled it alot better then my family and friends!! wow that was longg !hahaha
so a few days later, i went to see him. he looked at me and said i looked like i was in really bad shape. i couldnt even bend my joints, and it took me like 10 minutes to just walk down the hallway. he ordered more blood work [[14 tubes to be exact!]] he said it could be anything from an infection, to cancer. which was SCARY! he also ordered a chest and abdominal xray. the next morning, we got a call saying i needed to be admitted into childrens hospital asap because there was fluid around my heart and lungs and my liver was really enlarged. this scared me SOOO much!!!
this past december, i was NOT myself at all. i was sleeping, all the time. i was always really sore, my joints hurt really bad, i was freezing all the time, never hungry and just miserible, which is totally opposite of me cuz im always in a good mood! i went to the pediatrician and they said that i lost weight, so wanted to do bloodwork. i think she thought i had an eating disorder to be honest...haha but i went and got the bloodwork and the next day they said i was anemic, my protein levels were low and that i had inflammation somehwere im my body. i was refered to a rheumatologist...
i'm doing really well. its starting to get warm here in pittsburgh, thank goodness!! i can't stand cold weather! i'm actually lucky, the sun doesn't really affect me, but i'm always sure to put sunscreen on anyways. i always have :]
so whats your ''lupus story'' ?
hi there. just stopping by to say hello and introduce myself. my name is ashley :] feel free to message me anytime! i love meeting new fellow lupies
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