No Recent Activity

15 Visitor Messages

  1. I just read that you are in remission. That, is nothing short of awesome! Ride that wave as long and as far as it will go!
  2. View Conversation
    Sorry that you have gone through so much. Hope you are feeling better
  3. View Conversation
    hi anna! sometimes I forget to come on here and say hello to my friends so today is say hello to my whl friends day. i hope you are doing well and enjoying the summer.
  4. View Conversation
    Hi ANNA!!!!! Thank you for the msg! I really needed to hear your story! I get so confused from all of the drs saying different things! I have so much going on al the time lately that i dont know whats more important to think about! UGH! I am pretty busy with either feeling awful and/or getting tests done so ill try to get more into it by calling or being intouch somehow in the near future. My plate is VERY FULL right now. I posted a thread about the latest things. Please take care of yourself Anna. Love and Hugs to YOU XXXOOOO
  5. View Conversation
    HI! I am having the WORSE heart pains and problems! I went Monday and my rheumy found a heart murmur. My GP ignored my complaints for a long time. She did a stress test (ONLY!) and said "Jeannette, your heart is STRONG and HEALTHY, you dont need anymore tests". UGH! GEE, but i STILL have all of my symptoms AND, i have educated myself to know that a stress test is not as accurate for women as it is for men! She let it go! My discomfort is getting WORSE and its freaking me out. How did they find your problem? I get more tests done on Friday that my rheumy ordered BUT what if its not enough? What more should i be asking for? I SO APPRECIATE you being here for me and helping me out! I KNOW YOU have had your own issues in this area and i DO HOPE you are doing ok lately. Please take care of yourself and IM THINKING OF YOU! XXXOOO
  6. View Conversation
    HI HI HI!!!!! Hey, i have to get going cuz im having a bad flare BUT i DO want to talk to you more on whats been going on with you (poor thing!) Ive been having some pretty serious things going on with me and i also want to ask you some advice on how to handle it. Ill pm you next time im on. Please take care of yourself and ive missed you! THANKS for letting me know where youre at with things! I want more details though when we talk again! Love and Hugs! XXXXXXXXOOOOOOO
  7. View Conversation
    Hi Anna! Hey, just wondering, what were your symptoms when you realized you had a type of thrombosis? Im having some "issues" and id love some input on others symptoms. Hope you are well and THANK YOU!!! XXXXXXXXXXXXX
  8. View Conversation
    hi anna, just checking on you to see how you are feeling? Hope you are having a great week.
  9. Hi Anna, I have the flu, how are you? One minute I'm cold, next I'm hot. Can't keep anything down. Blah! I hope you are doing OK.

  10. View Conversation
    i will have to see if i can find a similar program here in georgia. I am trying to volunteer for hospice, but so far i haven't been able to complete the training program. You have encouraged me to keep trying. I am not a quitter, and i need to not let lupus take this away from me.
Showing Visitor Messages 1 to 10 of 15
Page 1 of 2 12 LastLast
Page 1 of 2 12 LastLast
About justomegirlindallas

Basic Information

About justomegirlindallas
SLE, UCTD, Subclavian Bypass, Subclavian Thrombosis
photography, music, computers


32 YO Wife, Mother and Advocate
Lupus - Subclavian Bypass May of 2009. Ectopic Lentis, Scoliosis(not lupus related)
Current medications: Aspirin, Plaquenil, multi vitamins, folic acid, Methotrexate, Tramadol PRN

You can find me on facebook at
Please tell me you are from here and who you are if you add me there.

I work full time and Leader for International Autoimmune Arthritis Movement


Total Posts
Total Posts
Posts Per Day
Visitor Messages
Total Messages
Most Recent Message
03-02-2012 11:19 AM
Total Thanks
Total Thanks
  • Thanked 15 Times in 10 Posts
General Information
Last Activity
07-16-2016 03:48 PM
Join Date

3 Friends

Showing Friends 1 to 3 of 3
View justomegirlindallas's Blog

Recent Entries


by justomegirlindallas on 06-27-2009 at 07:50 PM
I was diagnosed originally in November 2008
Then downgraded to something else in December by a Rheumatologist who... well, lets just say the "professional" was not satisfying the analyst within me or making any kind of logical sense -
I moved all of my specialist care elsewhere and established myself with a very nice Rheumatologist that for the most part seems to operate logically and consistently.

Long story - several hospitalizations and a bypass later I

Read More