• Saysusie's Avatar
    Today, 06:18 AM
    Thank you as well Shanna, may you continue to find comfort and support. Much love and I wish you peace and blessings. Saysusie
    2 replies | 43 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:45 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    2 replies | 43 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:22 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    0 replies | 31 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 428 view(s)
  • lucky7's Avatar
    05-16-2017, 02:00 PM
    lucky7 replied to a thread I'm a grandmom!! in Lauri's Lounge
    AWWWWWWWW!!! I MISS YOU!! It's been tooooooo long!!! CONGRATULATIONS on becoming a grandmama!!! HOW AWESOME!!! I think of you a lot even though I...
    4 replies | 428 view(s)
  • lucky7's Avatar
    05-16-2017, 01:38 PM
    lucky7 posted a visitor message on noelg's profile
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 456 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 456 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 183 view(s)
No More Results

446 Visitor Messages

  1. oh, you are one of the many lupies that deal with insomnia....mine seems to have its own mind. Sometimes i am awake at all hours of the night, and then i go through a time where i am asleep by 9 and up by 2 or 3....just when i get accustomed, it changes...

    hope you have plans for a nice weekend.
  2. View Conversation
    sorry to hear of your tough month, it sure is nice to come here and read when we feel bad, or just lonely.
    I just want to do it at normal times of day rather than all through the night into the early morning...
  3. View Conversation
    hi there! I just wanted to thank you for your posts here, many times they have settled my nerves!
  4. View Conversation
    I've started threads that have had little to no response. It doesn't bother me. I've gotten tired of having to explain myself about the same thing, to the same people.I hadn't seen the other posts, so I figured that it wouldn't hurt to try. I just remember that when I came, I was a little afraid since I didn't know anything about anybody. Since someone actually brought up her fear, I thought I'd try and help a bit.

    I look forward to a wonderful friendship
  5. View Conversation
    Hi there my sweet friend! Thanks for helping to comfort me some about it. There's a lot to consider. I know I'd be a nervous mess if it wasn't for the WHL gang and having such a good rheumy. Did you know that the doc's office does a lot thru email? When I signed in at my appt, there was a slot to put in our email address and I did. I got an email from them wanting me to register in their system...wow. Make appts, ask questions, get lab results thru email. Cool!

    I'll ask Oluwa for her opinions. Thanks. You forgot to tell me how you are Phyllis...fill me in. Are you feeling better?
  6. View Conversation
    Thanks for sharing your story. I am really happy that someone replied.
  7. View Conversation
    phyllis good to hear from you i am just like you had a bad week but glad to talk to you mikaela still recovering from lumbar puncture goes back to school tommorrow after vacation fearful about bullying still having to have more tests . stephen is sick again with ross river fever and lung problems like you i have been flaring up had virus made it worse. depression a bit bad at moment taking one day at a time. enough about me i hope you are feeling a bit better my friend i worry when i don,t see you in forum please take care my friend i am here for you if you need some to talk to hugs kim l
  8. View Conversation
    Hi Phyllis, you okay?
  9. View Conversation
    dear phyllis hope you are feeling alright my friend lots hugs kim l
  10. View Conversation
    I wasn't able to talk after all either...John had the stomach flu over the weekend into Monday...at first we thought maybe it was something he ate friday night, but when Amber started throwing up, and then we heard about other people they work with being sick with the same symptoms, and then oh man, I don't know if I had it too or it was just the medrol leaving my body but yuck, yesterday was really yuck! So sorry you were down Phyllis. Sounds like it was bad. I hope you are feeling better today. I'm still amazed at my throat...but it's back to being the same as it was. At least I have a script for something to try for that. I wonder if mtx or imuran would help with that problem too. I still haven't decided which to try yet. I see Doc Kim again on the 5th. I can't wait to talk to her again...I've got a lot more questions to ask her. It's great having a doc you can ask any question you have!! (((((Get well hugs)))))
Showing Visitor Messages 111 to 120 of 446
Page 12 of 45 FirstFirst ... 2101112131422 ... LastLast
Page 12 of 45 FirstFirst ... 2101112131422 ... LastLast
About mountaindreamer

Basic Information

Date of Birth
July 27, 1952 (64)
About mountaindreamer
My grandchildren, camping, hiking,
Safety Director



share a smile today


Total Posts
Total Posts
Posts Per Day
Visitor Messages
Total Messages
Most Recent Message
08-19-2013 05:56 AM
Total Thanks
Total Thanks
  • Thanked 81 Times in 70 Posts
General Information
Last Activity
07-25-2012 05:56 PM
Join Date

30 Friends

Showing Friends 1 to 10 of 30
Page 1 of 3 123 LastLast
View mountaindreamer's Blog

Recent Entries

first blog

by mountaindreamer on 02-17-2009 at 06:29 AM
trying my first blog ever. Not sure what blogs are for, but I love learning new things....so here we go.