Hi Phyllis just to wish you a lovely weekend and hope you feel good too xx
Hi Phyllis! So i guess that trip to Georgia has been kinda put on hold huh! BOOOOO!!! When i get to kicken again Ash and i will get there yet! I DO MISS YOU! I hope things are going ok with you and your family, the girls,the grankids, your son,and of course your furry child! lOL AWWWW, too cute! I updated thigs on a thread in Lauri's Lounge. Just staying busy with tests and appt after appt! I wont let it get my down though! Well, maybe just down on the couch or the bed, but not my SPIRITS! WOO HOO! Love and Miss you my FRIEND XXXOOO This is Ash in the drivers seat hopefully in the near future to visit my GEORGIA PEACH!
so happy to hear from you....i miss you when we don't chat. I hope this nurse will really help you and not just talk about it. I will keep my fingers crossed for you. you need someone to help you...this nurse probably knows a lot of people in the medical field...maybe she can find you a good advocate.
I am doing ok....feeling better now that i went back up on my mtx...
have a good night..let's chat tomorrow.
Oh yes i see it on the news the snow and how cold you are getting it there.I saw the nurse today,she said i have to change all doctors and she is going to see if she can find me an advocate cause i told her today,i can not cope alone dealing with it all.So lets see! I have to also get in touch with PALS,tell them how doctors are treating me and about recommendations being ignored all the time,like sleep clinic,blood work taken again,neuro tests,these are what the nurse asked for and im being left to rot lol.I hope i get this all sorted,im sick of playing the same record,i long for the day i feel much happier with help and actually liking life.
How are you today? Hope you are a little better every day.
Lots of love n hugsxxxxxxxxx
Hi Phyllis, how are you and Roscoe? Sorry ive not been around much. Happy Valentines day.xxxxxxxxxxxx
Part 2 of 2...I KNOW if I hadn't bulked up on my ibs meds before the shot, that side effect would have been worse. I felt some bone pain but it seems to be gone. I have a few bumps on my head that itch. I was stuffed up that night some but it wasn't too bad. All in all it went a lot better than i thought it may. john did a great job with the shot once we felt we had a dosage without any air bubbles in it. we unloaded and reloaded the syringe a few times. lol. the thought of any bubbles getting by us made us so nervous for a while. but i didn't even feel the needle or the medicine go in. he did really good. i took it in the fanny where the most fat is. lol. that also may have helped it hurt less. i still get warm really easy...did before teh shot but now it's really easy. yuck. does that happen to you too? Does your scalp break out?
Part 1 of 2...I'm glad yours wasn't too bad. So is it sometimes worse for you and other times not so bad? Side effects i felt were trouble staying awake and still have some nasty muscle aches. i even tried some of the oxy i have left over and it's not touching it either. Felt like I was running a fever, run down, and still feel really warm. The fatigue is some better. i still feel like i could sleep for a couple of days. I felt kinda blah, emotionally...indifferent to everything, not depressed just blah. No nausea but no appetite either. i made myself snack on pretzels. and i had a few bites of ramen soup that didn't feel like it was agreeing with me so i stopped. Later that night I had more of an appetite and John got me some little apple pies. those were good. but i never felt hungry. still kinda don't.
hey sweetie....how are you feeling? i am so sorry to hear about you being in the hospital. I hope they were able to help you....please keep me posted on how things are...i miss you when you dissappear...
HI PHYLLIS!!!!!! Just wanted to pop in to say I MISS YOU!!!!!!!!! Ill try to be around whenever im able to!!!! Hope all is well at home and with the BEAUTIFUL GRANDKIDS!!!!!! THINKING OF YOU!!!!!!! LOVE my FRIEND! XXXXXOOOOO
Hey Phyllis...sorry we didn't call. It's been a day of sleep, sleep, and more sleep. How are you? Thanks for holding my hand on M day.
trying my first blog ever. Not sure what blogs are for, but I love learning new things....so here we go.