Lupus and 24
by, 07-25-2012 at 06:21 AM (825 Views)
Hi everyone this is my first time on here so not sure if I am doing this right???? But here it goes. I am 24 and was diagnosed with SLE when I was 18. I have been on loads of different meds that many of you are taking at the moment. I was recently (a year ago) diagnosed with severe lupus nephritis and although my results are heaps better, my kidney doc is still not satisfied with treatment and is worried that if the situation is not controlled early that I could possibly be looking at dialysis and transplantation which SCARES me soooo much!!!!!!!!
He has suggested that I take Retuximab injections because there is no other real choice besides the steriods and myfortic which I am currently on plus many other things as well.
Does anyone know or have any experience with this drug????? any opinion, knowledge or advice would be such a great help as the risk of infections really scares me.