Had my first Benlysta treatment
by, 06-08-2011 at 07:28 PM (4128 Views)
I had my first treatment of Benlysta on 06/03/11 and it went well, up until I got home and had some dizzy spells. Wont let a few dizzy spells stop me from continueing with the treatment. So here is how my weekend went, had severe abdominal pain, lots of joint and muscle pain to the point i was ready to put myself out of my misery but I self medicated and was able to get the pain somewhat under control. I cant say for sure if it was the Benlysta or my Lupus rearing its ugly head (i say the lupus). i spoke with my Rheumy and he wants to admit me to run a battery of test , yeah that got a quick NO! so the plan is to continue with the Benlysta and see if their is a pattern but he did get me to say ill check in the hspt. if the pain continues. Today pain has gone down but last night was a very painfull night still refuse to go to the hspt.(what can i say im stubborn). By the way did i mention their is a small mass on the left side of my throat , that i hope is scar tissue from my surgery and not anything serious (suppose to see the endocrinologist at the end of this month along with a GI and I was suppose to see the cardiologost ssince January but im tired of seeing doctors and hspt. but ill try to get to it before the end of the year since my resting pulse is 116. Will keep everyone posted on the Benlysta treatment, next treatment date is 06/20/11. Wish me luck and im sending everyone a pain free hug. Oh yeah my daughter got invited to the National Junior Honor Society . hip hip hooray. Im so proud of her. Hugs slim.