Simple Pet Peeves
by, 02-17-2011 at 02:05 PM (990 Views)
With this disease being so unique in how it affects people, I'm just going to take a moment and complain about my own personal pet peeves. I doubt this will be too interesting to most of you so I will not be the least bit offended if you check out now : ). But my biggest problem is my lungs. Things aren't as bad as they were, say, three months ago, but I run out of air pretty quickly -- especially during a conversation. In fact, I often can't finish a simple sentence. It's kind of like the last of the air draining out of a balloon. My mom knows this and we've all been through enough of this together that I'll candidly (though kindly) say I'm simply running out of energy during a phone conversation. But for some reason, that doesn't stop her. And if she's in the mood to really dig in and make sure I'm doing all of the things I should be doing (for my disability, my mortgage, my housework), she'll ask question after question. Sometimes I'll try to field them and sometimes I'll just start doing my wheezing cough in hopes that she gets the message. If worse comes to worse, the infamous "I need to go to the bathroom," gives me a safe and quick exit. I do feel for my mom as we used to talk for hours and now I can last for up to ten minutes but on the flip side, my life is hardly interesting anymore so she's not missing much.
Pet peeve #2 - kind of funny - the mysterious appearing bruises. I know it's due to the prednisone but I often feel like the lady with the purple arms. I am NOT looking forward to summer when I can't hide the bruises quite so easily. Yesterday my son and I were getting in the car and I noticed a big, ugly purple bruise on the back of my hand. As usual, I have no clue where it came from and it doesn't hurt. It's just ugly! I pointed it out to my son with a smirk on my face and said, "another mysterious bruise!" My son, very nonchalantly replies, "maybe you're being attacked from the inside now!" I just thank God they don't tend to show up on my face or I would look like I was being beaten. The fall I took on the ice two weeks ago still shows with these big gashes to my knuckles and elbows. Honestly, it's one thing to feel crummy but to look like a falling-apart zombie is quite another!
Oh well, that's enough complaining. I need to get my bottom off this couch and this laptop off my lap and put the house in order before the boy arrives home. I actually put on makeup today so I want to follow through with the theme of appearing to feel better. And I did leave a lengthy message for my pcp to see if we could formulate a plan of action regarding what doctors I need to make appointments with and if I need to get on medication that might help with the whole lung issue and never-ending fatigue.
Take care and love to all my fellow lupusites!