Need some advice, 1:640 mixed pattern.
by, 06-20-2010 at 07:20 PM (3171 Views)
I am new to this, and have recently been diagnosed with lupus. I think Im either in shock or denial as my experience with rhumie was not positive. I attended my first appt with rhumie expecting that I may have mild arthrits due to years of playing sports to be told i have Lupus and am going to die. This was done within a 15 min consult. I have two young children and have been emotionally unable to cope since then. Im not sure that I even have lupus. My symptoms include
1. mild hand pain
2. cold fingers (occasionally) but not to the degree, that most other people post
3. occasional headache (who doesnt)
4. Positive ANA 1:640 speckled and homogenous
5. some other joint pain (have played sports for years and had a numner of injuries that required surgery) pain or stiffness goes pretty quickly after getting up.
I dont experience hair loss or have never had a rash. I do however have endomitriosis, which i was diagnosed with when I was 16, but it doesnt bother me anywhere near as much as it used to. I have 2 boys 7 and 9 and no miscarriages. I dont suffer from fatigue very often, when I do it is not debillitating, Im not bed ridden, I just feel like a busy mum of 2 boys. I am now 35 and work in a highly stressfull drug and alcohol counselling service. Stress seems to be my biggest problem and the associated anxiety.
All other test have come back normal no kidney problems, lung or heart problems. Negative RA factor. Have been put on plaquenil. Ii went from feeling pretty healthy with a little pain, to after beeing on meds to sick, lost weight, ringing in ears, forgetful and generally feel horrible as soon as I started meds.
I feel very scared from diagnosis and dont know what to do, any suggestions?