Want a new test done!---Ranting because I need to
by, 01-26-2010 at 10:30 PM (1728 Views)
I want to get a new test done for Lupus. I'm tired of beating around the bush, and my mom is saying that it might be fibromyalgia instead of lupus. I just want a diagnosis! At least if it's Lupus, I know how to deal with it! Why can't the doctor put something other than 'connective-tissue problems' on the stupid referal?! Please excuse my ranting, but I feel like I'm going nuts! 15 years of 'it might be Lupus' already has my hopes up of a diagnosis, but no! No more blood tests since I don't have healthcare anymore, and I have to pay for it all out of pocket! For obvious reasons, I can't go and get my limbs chopped off when they hurt the most! I actually want it to be Lupus! At least this way I have someone to talk to compared to know-it-all-know-nothing doctors! A few months ago, my mom says, "you know it's Lupus" and about half and hour ago she says, "It might not be Lupus. If might be fibromyalgia". GRRRR!!! Why can't anyone make up their minds!!! I'm so frustrated that It's making me depressed! I hurt nearly everyday, and not effected by the weather. Sometimes my leg hurts to the point of being unable to walk on it, I have to wrap my arm and it hurts to write. All of this, and I can't get an answer!
I was diagnosed with SLE even though I don't have positive ANA tests and my mom has changed her story again to 'It might just be fibromyalgia neuratica' ( I hope I spelled that right! lol.), and I need to find a doctor WILLING to redo all of the annoying tests. I don't care if I ended up with 100 blood samples taken. I am now stuck in the middle of my own little twilight zone. I'm ranting again. sorry. lol.