I'm in that nasty flare again where looking at the monitor even with shading hurts my eyes. So I'm down again. Miss ya'll and hope everyone is okay. I see my pcp monday.
Oh my dear friend.Im sorry you are going through this but so hope the doc can help make you feel a little better on Monday.We miss you,but rest and know im thinking of you.
Doc was kind as usual but it's not been long enough for another decadron shot. She did draw blood to check for some other things. someone is finally checking my thyroid! (i have two uncles with thyroid trouble) I should hear from her sometime next week about the results. she did enlighten me about something i had been puzzled about.
when i saw that hematologist, she found elevated anticardiolipin antibodies...did another test and it was normal, then wanted to do another test...and then I left her so called "care". i told my pcp i don't know if i should even be worried about it or not. she got out a book right there in her office and looked it up! I love that woman! she said she didn't think i had to worry about clotting but she said patients with sjogren's and lupus do have elevated numbers in those antibodies. she can't figure out why the specialist didn't acknowledge that or we suppose the specialist didn't know as she didn't know a lot of other things either.
it's something else found in my blood that points to lupus and sjogren's but still no damn diagnosis... it's still all the complement deficiency's fault according to them. but not my pcp...she feels sure it's lupus and sjogren's.
she refilled my scripts and gave me a good pep talk. i have an appt with the neuro at the end of the month i'm looking forward to. she told me she trusts this neuro...she hears good things about him working with his patients. if we could get a handle on all of the pain in my head and feet, i'd be fine dealing with the rest of the woes.
Well let me know how the neuro appt goes.Just rest up and know i care n hope you heal up n feel a touch better very soon.We miss you when you are away,but am glad your doc is helping you.Lots of love Amanda.xxxxxxxxx