Happiness and Frustrations
by, 04-26-2009 at 08:24 AM (678 Views)
My trip to Yosemite was boat loads of fun!! I got over my sickness just in time for it, and though I still had a minor cough, it didn't effect me too much while on the trip. And Lupus didn't really effect me too much either which I am very grateful for! I was able to do all the hiking. We even went on a 7 mile round trip hike which was strenuous uphill the entire way for 3.5 miles until we reached the top of Nevada Falls and then turned around to come back down. We saw 2 waterfalls on that hike... Vernal Falls and Nevada Falls. I will post some pictures once I am no longer lazy
When I got home I got all my grades in for this semster! Four A's! I didn't even get a single A- for the first time EVER since I started college I hope this means I picked the right field!
I do have some frustrations at the moment, however, mostly with my rheumatologist. I'm getting so frustrated at her lack of explaining things to me. I went to see my chiropractor last week and he wanted to know what medications I was on so I told him. I also bring in copies of my labs to him so that he knows what he's dealing with. When I told him I was on Lipitor he got pretty upset. He explained my lab results to me and about how my LDL/HDL ratio is 2.3, which means I'm at an extremely low risk for heart disease. He said there is NO WAY I should be on Lipitor because, for one thing I don't need to be on it, and for another, it can cause me problems with my muscle functioning. Why the heck did my rheumatologist put me on it??? I'm glad I have an appointment with her on Tuesday so that I can ask her this and then see if I can stop taking it.
She also recently increased my CellCept to 2,500mg with no explanation other than there was blood in my urine, which there has been since my very first urinalysis. So what is the difference this time? She just had her nurse call me and tell me to increase my dose. I told the nurse I would really like an explanation before I just increase it. She said OK, she would ask the doctor. She then called me back and said that the doctor told her she doesn't have time to explain it right now but that I really shouldn't wait to make the increase. WTF??? After she told me that I moved up my appointment day. I need some answers.
So on Tuesday I'm going to see my rheumatologist and ask her these questions, and hopefully also get more of my tapering plan for Prednisone from her. I'm now down to 17.5mg and by Friday I should get to decrease to 15mg. Then on Wednesday I'm going to see a new rheumatologist at UCLA for a second opinion. His name is Dr. Louie. It will definitely be very interesting to see what he says about all my lab work and current medications.