by, 04-18-2009 at 03:05 AM (783 Views)
Hey everyone, i thought i would write my very first blog and tell you all about myself.
Well firstly the reason i am here is SLE with involvement of the skin and blood. I was diagnosed around 3 months ago on the 24th Feb.
I was first admited to hospital on my 17th birthday and then re-admitted on my mums birthday. All in all February was a huge nightmare. I miss the first 5 weeks of year 11 and just wanted life to get back to normal.
Currently i am on prednisone (cut down from 37.5mg and now at 15mg), plaquenil and finally fosmax. I am trying very hard to get used to all of these but so far it is proving difficult.
Since then my life has not been the same. Thankfully i have now started to do the things i love agin like dancing and acting. However i am certainly not so used to taking things so slowly. I have found a new love for reading as this is one of the only things i have been able to do recently without getting too tired. Over the past 3 months i have also collected heaps of DVD's and this has turned into a hobby.
Whilst i was in hospital they ran heaps of test and they did a fuw ultrasounds. I was suprised to learn that my ovaries are nowhere to be seen and that i will not be able to have children. This has been the hardest thing for me to deal with so far.
It was a huge relief for me to find this site. Support was certainly lacking for my friends so i am glad to have found people who can relate to me.
Feel free to message me if you need support and i will do my best to give advice.