All Blog Entries

  1. the REAL cost of Lupus

    What do I mean by the real cost?
    Lupus costs in every way!

    Lupus causes us many difficulties.
    Lupus causes us many hard ships.
    Lupus causes our health to fail.

    All of these things are a cost of having Lupus.
    These are not what I am referring to.

    As humans we identify people by there traits and personalities.
    We say this is a kind old woman,
    Or he is a grumpy old may.
    Even she is a busy body.
    These traits make ...
  2. Steroid Information

    I came across two articles that had a lot of information about steroid use, including dose equivalents, drug interactions and potential for adrenal suppression.

    One of the sources (Primary Care Medicine: Office Evaluation and Management of the Adult Patient, 6th Edition Chapter 105, Glucocorticoid Therapy) can be found at

    For the other source (Chapter 14-Glucocorticoid Therapy and ...
  3. Moving

    by , 10-06-2012 at 07:30 AM (Living Life With Lupus Nephritis)
    Yeah so I finally struck up the courage to ask my social worker and kidney doctor to put me in a group home about a month ago. I'm still living with one of my good sisters but I'm getting ready to make that big move into an AFC home. Strangely, I am very excited because after the group home I will be in independent living, and after that I will totally be on my own. I've never been on my own before. I really am looking forward to that. I guess I'll really have to be diligent on waking myself up, ...
    True Stories
  4. Any thoughts about Benlysta?

    Hi I was diagnosed with Lupus SLE after asking about my red face at the dermatologists visit. It sure did explain why I had no energy, stamina,ran fevers had aches and pains that come and go for years.
    I had thought it was normal to have back pain or leg pain, you see I was in a car accident and had my back fused and a few years later had a motorcycle accident and had my hand fused back together so I thought I was just getting older.
    Now that I know I have been on Plaquenil and Prednisone ...
  5. New to Lupus

    I was diagnosed about a year ago with Lupus, Sjrogens, and osteoarthritis, I've been taking plaquenil for almost a year, thank god no side effects, recently I was diagnosed with Mortons Neurona, WOW so much pain, I'm trying to avoid the injections, its been three weeks And I'm still having pain, not as much as before but its still hard to walk normal, any suggestions
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