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  1. 7.1.09

    So, just needed to unwind. Things at home are great. Keith takes care of me like no other. He surprised me the other day by wearing a purple Lupus support bracelet-big burley homophobic firefighter keith-wears this purple bracelet with a butterfly on it. LOL. Anyway, been under a lot of stress taking a huge national test for work and fixin to start nursing school. My parents just informed me they're getting a divorce (finally) but it's still hard. My body aches. I work 24 hours on and 48 off for ...
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  2. New Photo Album

    I decided to start an album of my symptom pics. I am calling it This Is What I Look Like When I Flare. Obviously, there are symptoms that are just not photographic (fatigue for example) but these are selections of ones that are. I wanted a place to share with you what my symptoms look like and get feedback on them. Please feel free to swing by and leave a comment. I will try to add new photos of symptoms from time to time.
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  3. Vent!

    I was diagnosed originally in November 2008
    Then downgraded to something else in December by a Rheumatologist who... well, lets just say the "professional" was not satisfying the analyst within me or making any kind of logical sense -
    I moved all of my specialist care elsewhere and established myself with a very nice Rheumatologist that for the most part seems to operate logically and consistently.

    Long story - several hospitalizations and a bypass later I ...
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  4. unusual worry

    this may sound a little weird but I am a little worried. I have a 2nd opinion appointment with a new rheumy on the 2nd and right now I am feeling soooooooooo good, that I am barely showing any flare signs. Ankle swelling, gone. Stomach has been good. Psoriasis on eyelids cured with the FML. Random rash on legs just a mere scar now. Cheeks noticeably less red lately. Energy level is up. Joints are feeling good enough to go dancing and walking again. *sigh* I realize that this is actually ...
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  5. Flare Yo Yo

    I'm currently going through a weird flare. It has almost been consistently bad one day, better the next, bad the next day, etc... Now I'm going into week two of this.

    Life has been more stressful lately so that may have something to do with it, but a day of worse and then a day of better? Weird! But this makes three days in a row I didn't need to sleep with an icepack on my head...YEAH!
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