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  1. Finally feel alive again

    I've certainly read all the horrors that go with Prednisone but after trying to reduce it down to 10mg and forcing myself away from the feelings of suicide 90% of the time, the ever-increasing pain and a fatigue that's one step from death, I realized that my quality of life is far too important to dial down the prednisone because it has side effects. As far as I'm concerned, the side effects of not using it are far more intense. Today is the first day in over a week that I felt like I could get ...
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  2. Lupus diagnosis advice

    by , 12-31-2010 at 12:58 AM (Why, with all the meds, do I still hurt?)
    Quote Originally Posted by terriaw44 View Post
    I'm new to this site. I have been sick since October of 2009. I went to the doctors in January of 2010 for the fatigue, depression and overall pain. My doc ordered blood tests, they came back showing postive ana, low vitamin D, high cholesteral..can't remember some of the other things. He sent me to a rheumatologist (my spelling sucks!). This doc has run blood tests, same results, which still didn't give info for a definitive diagonisis. I had an MRI, which showed something in the white matter-they
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  3. Not another day in paradise

    It's another day of utterly pure, profound fatigue. The phone rings around 10:30am and I can barely move to get up and get it. When I do, the caller has already hung up. I can feel the tiredness hang around my shoulders like a rock-solid cape. I do what I always do, I grab a soda and pray that the caffiene in the soda will perk me up but it doesn't. Nothing does. My mom calls soon after and honestly, I'm not in the mood to pretend like I feel well. I want to go back to bed so I start the ...
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  4. Tired Lupie

    Before the fun even starts ... I'm already tired. I still want to go get wrapping paper and maybe one more thing for my mom and my hubby, but wow.. fatigue has hit me like a ton of bricks today. I hope that I can muster up the strength before it's too late. I hate pushing myself when I know there are things I HAVE to do. I took a therapeutic dose of prednisone and I'm hoping that it will work. I have one more before I need a refill. Ugh. I just miss the good ole days when Christmas was spent ...
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  5. Last minute lupie

    I have waited until the last minute to do Christmas shopping. I cannot stand going out and doing it. I have to get my mom and dad something and also my husband. I know what I'm getting them.. mostly.. I just have to get out and do it. #1 I hate the traffic #2 I hate the crowds #3 I sweat and hurt after two steps so it's extremely difficult. I should be ignoring that and going anyway, but dang..it's all I think about. I will try to be more positive though. Starting to work has been good for ...
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