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  1. Faith Of The Heart!

    Dear WHL Family;
    It has been quite a while since I posted a Blog. However, I just wanted to share some of my thoughts about faith, love, and loss.
    Each year, around the holiday season, I and my family fall into a dark abyss from October until January. These months represent our daughter's (Lauri's) birthday month..Thanksgiving without her, the anniversary of her passing (12/10), her wedding anniversary (12/13), and finally Christmas and New Year's without her.
    No matter ...
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  2. Medicine Confusion

    For the past two days the only thought that consistently rings in my head is, "I want my mom." My mom is close by and easily accessible. But when I'm sick and in pain, somehow it seems like she can make me feel better. I've been cutting back on my prednisone significantly and it seems like every decrease in prednisone causes a dramatic increase in the pain of my fibromyalgia. Earlier today all I could think is, "God, please make my lower body go numb." I had forgotten how ...
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  3. Good evening to everyone, a happy hello from a new member!

    Quote Originally Posted by Shining Star View Post
    My name is Shaista. I write a blog at http://shaistatayabali.blogspot.com
    The title of the blog is Lupus in Flight, which is always my intention and my hope - to somehow find the wings to fly beyond these seemingly limited skies. Hoping to find friends and advocates here, for a better future.
    I was diagnosed with SLE in 1997 and have since acquired acute steroid induced glaucoma, retinal and peripheral vasculitis, necrotizing lymphadenitis, pleural and pericardial effusions, lymphadenopathy...
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    Tags: ivig, rituximab Add / Edit Tags
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  4. Tired of the pain

    This winter has been especially hard for me. I have new symptoms and I feel afraid much of the time. Trying to do some Christmas shopping this year was horrific. I got stuck standing in line and suddenly it felt as though the muscles were being torn from my spine. I barely made it back to the car with my friend, and I cried almost all of the way home.
    I had taken one of my long acting pain meds before shopping in anticipation of problems that I knew I had. Nothing could of prepared me for ...
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  5. Swelling of cutlcles on my fingers

    Has anyone had this problem, my fingers around the cuticle are so tender and swollen that it looks like an ulcer wants to come in, but ive tried topical creams seems not to do anything and i try not to bump them because the pain is great. I feel like I smashed my fingers in a drawer, ouch!! If you have any suggestions please let me know

    Thanking you
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