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  1. The beginning of hardship: part one

    by , 08-31-2012 at 05:12 PM (Living Life With Lupus Nephritis)
    It was a scary night when I first realized that something was terribly wrong with me. I was writing a letter to my favorite brother(who is away in the U.S. Navy), when all of a sudden my hands started to cramp, twist, and bend in all types of directions. It seemed as though this self-torture would never cease while I screamed at the very top of my lungs. Even Mother could not help me, as she lay there on the couch hollering,"Girl! What's the matter with you! Oh my poor baby!!!!"
    ...

    Updated 09-01-2012 at 07:07 PM by The Survivor

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  2. What a great over night stay in the hospital!

    Had a great over night stay in the hospital. I think my inflammation had hit all new high and got admitted. Except my wonderful Dr. only told them I was there for back pain and didn't tell them anything else. I do have a new diagnosis though RA along with my lupus. Yeah, one doc wanted a 2 day stay and test, another doc wanted another test and another doc, said no test get to go home. I love it when information is shared. And why on earth do they pump you full of pain meds then come and push on ...
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  3. A Better Day!

    Well yesterday and today I feel a little better. Not so emotional and not as much pain as I have been in lately. But am trying to remember that I still need to take things in stride and not get everything done just cause I feel better today in fear of how long it will be before I feel this good again. I have a bad tendency on the days that I feel better to just get up and try to accomplish the list of a 1,000 things that I have not been able to do cause of my Lupus. But am scared thats just going ...
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  4. Ok well I hope this is the one place someone can be honest! I am scared to death!

    I am not sure what to expect from this but from what my doc tells me this should be getting better. But honestly the first 2- 3 weeks of methotrexate and anti-inflamatories and pain meds and it felt as though was getting better but now seems not so much. Its hard to type my hands get so stiff and hurt. There is always something hurting. Does this ever get better and less meds? My mouth tastes like a dry pharmacy, YUK! LOL! I am trying very hard to be funny. When I am really sad and scared. Just ...
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  5. What a month this has been!

    I was recently diagnosed with Lupus about 6 months ago while my husband was deployed for a year. That was fun to say the least. I have read a lot about lupus but have found no matter how much I read about it, doesn't replace actually talking to people who are living with it. The past couple of months have been really painful, finally went to the doc 2 weeks ago and found out my ANA was 12 and was 3 times worse than it was 6 months ago. Not sure what all that means or how high or low its supposed ...
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